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I have had CFS for at least 2 years. My fatigue has gotten worse over last couple of months. I have been trying different interventions (eliminating medications, adjusting diet, trying vitamins) . I do feel better when I avoid sweets and eat vegetables (as do most people). I have less gas without wheat or glutten. For energy, though, the supplement that seems to give me a small boost is Co Q10. Maybe a 5_10% boost. I don't know if its placebo effect.
Has anyone else had a positive effect from this?
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Have you been taking it long? I tried a month's supply (and probably missed a day here and there) but I can't say I noticed anything different.
I've been taking 200 for about two weeks, started on 100 a month ago. I think a month is a good trial. I would've thought you'd have some effect by then if you were going to have one.
I do feel a little better, but it could be due to other dietary changes I've made and maybe better pacing?
I still have a bit left (got it on sale) so I'll keep going and monitor my functionality.
Can't hurt. I've seen some people say they've used it and got a boost - but quite often, they have made dietary changes or something too, so it's hard to know. Plus of course, different things work for different people! All we can do is try things. Fingers crossed it is making a difference for you, then.
Unless you have very depleted levels of certain vitamins and minerals one shouldn't feel a "boost" from taking any of them. It probably is a placibo AND MARKETING BY CROOKS OR WELL MEANING BUT WRONG ADVICE GIVING FRIENDS!
If you NEED a boost, get real and take a stimulant to help you function! A non-sufferer of CFS/ME has to worry about overdoing amphedamines but a sufferer of CFS/ME NEEDS a stimulent just to get out of bed with a clear mind!! Don't let unaffected people, even Doctors - since they don't know anything about CFS/ME -what it really is and that treatments that actually help with the cause are NOT AVAILABLE, but coping meds ARE!!
You are right that there are plenty of people are willing to take our money for empty promises. I'm cautious about that, knowing that there is no cure, as of yet. However, as a post-menopausal woman in her 50's, nothing is as optimal as it once was, so why not take some vitamins if they help a tiny bit? I'll take a 5% improvement if that's all I can get. For instance, my vitamin D level was a little low, so I take supplements, can't hurt. After 5 weeks, I don't feel like I'm "better" overall on Co q10, but I may have a little more stamina on walks, especially uphill. Though, after some time, I may just stop it and see if there's any difference.
People have to be careful with stimulants, which have some serious side-effects. It might work for some, but not me. I took serious amounts of coffee for decades - started shift work in hospitals when I was 21 and did it with 6 cups a day (when working). Problem is that I was never sleeping properly and it adversely affected my health. I quit daily coffee at age 56 - I sleep better and I'm less anxious. I still have a cup of coffee once in a while, when I really need to function, but I will pay a price the next day, when I spend most of it in bed. I have a friend who took Aderall (for a different disease). She reports that she will take it, like I take coffee, good to make herself function, but will pay a price the next day. I'm glad if it helps you but just be careful.
Vitamins are suppliments that can help with deficiencies that can occur for many different reasons. Suppliments claim (and wishful thinking the hope they will make you feel or perform better. Personal testimonials are not a good way of knowing they help scientifically. I take multi-vitamins, and specific vitamins for actual deficiencies revealed in blood tests, because I am hoping they help. They have not been providing any real energy boost.
Over-dosing or addiction are the biggest problem with any "helping-to-cope" medication.
I've used adderal, very effectively and without ever-increasing doses, or unwanted side effects, for 5-6 years. Without it, my mind will not clear or my body function in unity with my mind.
Since the alternative is to live in a mental fog and have very little energy to do anything other than feel horrible, AND having tried about every recommended alternative by well meaning but ignorant of this illness doctors, friends, and family, with no positive outcomes, I have done better by doing what actually works.
Until a scientifically proven cure is found I can't live on false hopes that any "why don't you try this..." advice by doctors or anybody else will do anything good for my health or mental well-being.
I'm currently in month two of a test of ubiquinol, the more effective and expensive form I'm thinking maybe the same, 5-10% benefit.
There are blood tests for this nutrient. A study of the effect is warranted Consistent application of a consensus diagnosis and a metric for improvement is needed - such as relative step count
I am very sensitive to caffeine Green tea with its theanine was very nice, but even that disrupts my sleep, but not severely. I'll try it again, and maybe white tea.
I like to suspend supplements to see if the initial effect is still there.
Thanks for responding. I'm glad that you might be seeing some benefit. I like your approach with studying a metric. I have a fitbit and will start wearing it regularly to see. After a while of measuring this I should quit it to see, like you said.
I did not know there was a blood test for this. Might be worthwhile.
Interestingly, I took a 23 and me DNA test a while back and it said that I'm likely to be more sensitive to caffeine than most. I know some people can have coffee after dinner and snore away, but not me! White tea is an interesting thought - I've never had it.
Dr. John K. Chia in Torrance, CA is a CDC doctor and knows which tests to run that a typical doctor wouldn't know to try.
I'm glad the Adderal is helping you function. Since we have no cure yet, anything that helps us function is great. I'm still trying to find out what helps me. I suspect it would have too many side-effects for me, but I'll try anything.
Thanks for reminding me about John Chia! I've seen videos of him and he seems brilliant. I'm using Kaiser insurance and seeing how far I get with their doctors. If I get no answers or improvement in a while, I might pay out-of-pocket for a consult with him - if he is available.
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