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Coeliac and Morning Anxiety.. HELP!!

Posted , 3 users are following.

Coeliac_Chris
Coeliac_Chris

If anyone could help or advise I would be eternally grateful, access to information is extremely limited and from what I am increasingly discovering doctors from GP’s to specialists are pretty clueless with this link.

I originally posted my symptoms on here three months ago. Background, I was slowly recovering from the diagnosis of Coeliac Disease in March, I’d just enjoyed a fantastic weekend with my girlfriend when I was randomly hit by a huge bout of anxiety that took me off my feet. Never had a history of anxiety, had no reason to be hit by it.

Symptoms that have followed include: Anxiety that is worse in the mornings, fade in the afternoon and die off after 6pm – dizziness, confusion, displacement – acid feelings in my legs, jelly arms, intercostal pain in ribs and numb limbs. It’s like ground hog day every day and this has been my life for the last 12 weeks.

I have had every test imaginable Vitamins, brain scan etc and the only resulting factor is cortisol levels are too high – I have been tested for Cushings and that doesn’t appear to be conclusive. The doctors have advised taking anti anxiety meds to curb the problem but I refuse to take them as I know its not the root of the problem. I dose out on Kalms each day just to take the edge of the feelings.

I am aware there are links between Coeliac and anxiety, I would be interested if anyone has experienced the same symptoms and recovered?

I have taken the following to date which has had little to no success: Vitamins B, C, D – other complex vits like Berroca. I have just started taking Magnesium but a little too early to say whether this has worked or not.

Any help or advice would be really appreciated.

1 like, 3 replies

3 Replies

  • AL8008
    AL8008

    Posted

    Is it possible that you got glutened on that weekend ? My son gets very anxious, moody and tired if glutened.

    Also the cortisol levels will affect that too. I would look at natural products to help the cortisol but consider taking a very tiny amount of the klonopin so you avoid a circular affect on that. Too much stress, high cortisol, then feels like more stress. I understand you don't want to but while you find the cause, it might help. If you have sleep issues it can help with that too.

    It takes a while (1-2 years) to recover from Celiac and almost any system can be affected.

    Hope you feel better soon.

  • lynda01728
    lynda01728 Coeliac_Chris

    Posted

    Hi CC,

    I would be so interested to know how you are one year later!

    I feel like I am going mad. I have all the symptoms you mentioned and more but not all the time. I was diagnosed last summer after years of being told it was viral, the menopause and failing that I was obviously nuts and put on anti depressants!

    I do feel a lot better than I did in many ways but still lots of probs including morning anxiety. This morning I woke up shaking like a leaf and burst into tears!I have recently introduced gluten free oats in to my diet and am now wondering if there is a link. Actually I feel better not eating any grains at all.

    The GPs are completely useless and a senior nurse at the hospital asked me what Coeliac is.......and then said.....'oh yes you can't eat dairy can you'!!

    There is no money to be made by the pharmaceutical empire to research into coeliac.....there are no fancy expensive drugs to remedy us so no one is

    interested.It is disgraceful that it takes on average 13 years to be diagnosed and the repercussions of this can be at best severe if not life threatening. My children were questioned as to why they wanted testing as they have no symptoms (yet)even though they have a 1 in 10 chance that they also have this horrible disease. Clearly they have to start suffering before they can get a simple blood test that could prevent all the years of misery I endured.

    Anyway, sorry this has turned into a bit of a rant. I do hope you are feeling better and would be grateful for any advice. I'm going to give the magnesium a try.

    Lyn smile

     

    • Coeliac_Chris
      Coeliac_Chris lynda01728

      Posted

      Hi Linda,

      Sorry you appear to be going through what I did, the good news is there is a light at the end of this tunnel, I'm pretty much back to my old self. You're not going mad, although sometimes anxiety makes you feel like that. In time it will pass. Can I ask the last time you had all your bloods checked? Worth a check up just to ensure hormone levels are ok. Anxiety creates adrenalin, adrenalin makes you shake, accept that anxiety is making you feel like this and it will pass, the more you accept you're not quite right at the moment, the quicker you'll recover I promise. Chris x

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