coeliac or gluten intolerance?

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I took a blood test for wheat allergy and got a nagative/not allergic result. 

However, I have major intestinal issues etc when i eat wheat, even a bit. So is it coealiac or gluten intolerance and why didn't the test catch it? I know it is not all in my head! smile

Oddly enough though, i can have a slight bit of the wheat-and-soy based soy sauce in foods and be ok as long as it is in moderation. but anything else with wheat kills me.

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5 Replies

  • Posted

    I have a friend who is gluten intolerant and she found out herself. No Dr or test revealed it. She is fine now. So go onto gluten free bread and foods
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  • Posted

    My niece reckons she is gluten intolerant and has given up gluten and everything is fine. It was not diagnosed though. I gave up gluten because I am on steroids, I find gluten free bread dusgusting so I just don't bother to eat bread and do not really miss it. I have cut out simple carbs too and feel fine without them. 
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  • Posted

    You seem to have found a simple solution to your digestion problems. As long as you haven't got an underlying, as yet undisclosed illness whats wrong with your approach? Mind you, it is a real challenge to avoid wheat based products, but you know that already. I think that the problem lies with differentiating between allergy and intolerance. Could be a very mild allergy or a severe intolerance i suppose. Do you keep a food diary? It's worthwhile because it can give you some valuable information that you can try to correlate with the ill effects or not of other foods. Good luck.
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  • Posted

    How are you feeling? Did you give up gluten, or ask for tests for Coeliac Disease

    If you were only checked for allergies, then a Coeliac reaction wouldn't be caught (as we found out with our younger son). There's a specific panel for CD and if that looks questionable/bad, then you move on to an endoscopy with biopsies and the biopsies will confirm or rule out a Coeliac diagnosis. But, if they ran the Coeliac Panel, too, then you probably have an intolerance but not an allergy or auto-immune reaction. It's not great news, but best news considering your symptoms.

    Please let us know how you're getting on!

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  • Posted

    Hi gem,

    Just like to say that a doctor told me the nhs don't test for intolerances. Allergy tests show only allergic reaction. I'm wheat and dairy free and find I can't do the soy sauce you can without an affect! Also, my intolerance got worse over time. Wheat and not just gluten (I can eat oats) affect me. Have had it 20 yrs so am used to it now. Bread wise-genius seeded is good-expensive though.

    Hope that helps

    B

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