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I've experienced symptoms for as long as I can remember, which are now classified as symptoms of coeliacs disease.
I went off gluten when I suspected I was coeliac, and the symptoms dissipated: bloating, abdominal pain, heart burn, lethargy, nausea, bone pain, dizziness (somewhat like vertigo), constipation/diarrhoea; the little bumpy rash on my upper arms and legs seemed to go away for the most part as well. When I mentioned it to the doctor she said I'd need to have a blood test but that I'd have to eat at least two pieces of bread daily for four weeks. WELL the first few weeks of that was hell. Everything came back with a vengeance and my mood absolutely plummeted. I was depressed, irritable, couldn't sleep and all of the lovely things I'd experienced before hit me at a stronger force than I'd had them before.
However, the blood test came back negative for coeliac, B12 was fine, lipids and glucose levels were all fine and full blood count was ok except for the "inflammation levels" which were up, and liver function was abnormal as well.
I've read a few posts on here from people who had felt disheartened when their blood test came back negative, and I can understand that. - it's not that I want to have coeliacs, but when you tick all the boxes and come out the other side without an answer, it's understandably frustrating.
The doctor rounded off the whole thing with "maybe there's just something in wheat you're sensitive to", but unfortunately it isn't just wheat, in fact rye is the worst, and everything goes "puffy" the next day (swollen feet, fingers, hands, along with feeling bloated etc).
I have always felt "sick" even as a kid after wheat cereals, pastas, rye breads, barley/malt, but originally thought I might have been lactose intolerant but I'm confident that isn't the problem.
I guess I'm just wondering now, what do I do next? Part of me accepted what she said and walked out the door. Then I felt angry. There is something really wrong with my body and I have to just accept it's nothing?
I'm just wondering how many others have had a similar situation and if you could share some of the things you did, or what the outcome was.
Also, does anyone know if there are specialists or someone other than a GP you can talk to about this sort of thing.
Thanks in advance,
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