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Coffee?

Posted , 13 users are following.

Padada
Padada

I would like to know if anyone has any information on whether coffee is harmful while taking prednisone?  I would like to have just one cup of coffee in the morning, but I stopped drinking coffee when i started the prednisone.  Any comments, articles or anecdotal experiences would be appreciated.  Thank you.

 

2 likes, 35 replies

35 Replies

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  • faye______00403
    faye______00403 Padada

    Posted

    I can only tell you that my doc didn't say anything about coffee.

    Like you, I like that one cup in the a.m. and don't have any

    bad affects so assume it's okay.

  • tina-uk_cwall
    tina-uk_cwall Padada

    Posted

    Hi padada, I drink 2 cups of coffee daily and I'm ok. Regards, tina
  • ptolemy
    ptolemy Padada

    Posted

    My rheumy said it was fine to drink coffee. I have heard people say it can increase glucose levels though and it is a good idea to not drink it around the 7.5mg pred mark when the adrenal glands are waking up. That said I have had two cups today! I love coffee.
  • constance.de
    constance.de Padada

    Posted

    If we stopped eating and drinking all the things we like we'd have a boring, if healthier, life.  Everything in moderation!

    Regards fr C.🍟🍕🍷

  • LayneTX
    LayneTX Padada

    Posted

    Interesting to read others experiences.  My Rheumy said 1 cup ok.

    but I'm reactive hypoglycemic, so it can mess with my blood sugar. 

    Also, on Pred. I feel more easily to get anxiety. So sometimes, coffee or fruit makes me feel a bit anxious...darn it!  

    Im usually a morning person but now am SO tired in mornings, so I just have 2-4 oz. of STRONG French Roast! Sometimes I feel anxious.  I assume my cortisol is messed up. (7 mg)

    I avoid stimulants in afternoon, if I have fruit in afternoon, I find myself waking up in middle of night for several hours, sad 

  • Diana112
    Diana112 Padada

    Posted

    My Calcium/Vit D tablets (Natecal) say no tea 2 hours before or after taking Natecal tablets so I have been drinking coffee - at least two or three cups so I hope it's ok.
    • LayneTX
      LayneTX Diana112

      Posted

      Might read up on cortisol... Now that we are aging, seems I read cortisol important role and coffee might affect it negatively.  I hope Eilene might chime in and have some knowledge on this. 
    • ptolemy
      ptolemy Diana112

      Posted

      Natecal can interact with foods containing oxalic acid (eg tea), phosphate and phytic acid (eg chocolate!!), so you need to give a couple of hours both sides of taking Natecal. Coffee should be fine, which is the good news.
    • Diana112
      Diana112 ptolemy

      Posted

      Tea is so much nicer tho - have to give the chocolate biscuits a miss as well, probably just as well in view of the weight gain whilst on pred I suppose.
  • lodgerUK_NE
    lodgerUK_NE Padada

    Posted

    I took a scunner to tea when first diagnosed with GCA and on 60mg of pred.   Coffee was fine, no problem at all.

    Eventually when down to about 20mg, tea was OK.  I continued with both.

    Other folk I know had found their taste buds changed and somethings had no taste and others they just did not want to eat.

    We are all so different and what suits one does not always suit another.

    • constance.de
      constance.de lodgerUK_NE

      Posted

      I'm not sure what a "scunner" is (although by birth I'm a NE)!

      I went off tea at the beginning of PMR and the taste has never returned.  I used to say "I'd kill for a cup of tea" (it was by far my favourite drink).

      I also didn't want to eat - took off 1 1/2 stone.  I've put on about six pounds  now, but still well below what I used to weigh.

      PMR - will anyone ever understand it?

    • lodgerUK_NE
      lodgerUK_NE constance.de

      Posted

      Sorry I used a dialect word, I was just no thinking.

      Scunner = sudden dislike of the taste of something you have eaten or drunk for years is the nearest I can come to an explanation.

    • paula63201
      paula63201 lodgerUK_NE

      Posted

      Very interesting, and thank you for the explanation. What is NE in your name? Where is this dialect used?

      Paula

       

    • lodgerUK_NE
      lodgerUK_NE paula63201

      Posted

      Geordie Land.

      North East, there is a map on our website - PMR&GCAuk North East Support.

    • Padada
      Padada lodgerUK_NE

      Posted

      Lodger, yes I am one that lost sense of taste and lost my appetite both after starting prednisone.  Although I do suspect the prednisone as the culprit, I wonder if the pmr autoimmune issue has anything to do with these losses?  This disease is so not by the book and that to me is frustrating.  So good to hear everone's experiences. 

      Also, I wonder why we haven't heard from Eileen lately - I hope all is well with her and I do miss her input.

    • LayneTX
      LayneTX Padada

      Posted

      Padada, 

      i am now going through lost tastebuds!!!  3 weeks ago I assumed I had Thrush, took anti fugal as per Rheumy, for 1 week.  Now I have severe dry mouth, tongue is RAW feeling, burns, I can't taste anything! Well, basically nothing.

      I JUST this morning had an Edoscopy and he said it's clear, YEA! atleast no ulcers or other and sphincters are good and seems NO acid reflux, which I was thinking was cause of my esophagus irritation.

      so...is this Pred? Is this similar to your experience? How long taste been gone? Did you have dry mouth? Infection? 

      I'm so bummed, food and wine has been my joy!!!! I live in wine country! 

       

    • lodgerUK_NE
      lodgerUK_NE LayneTX

      Posted

      Nope, just lost taste of different things, it is not a listed side-effect, but then if people don't report it using the Yellow Card system, then it don't get listed.

      It happens to loads of us  - it all comes back, eventually.

    • lodgerUK_NE
      lodgerUK_NE Padada

      Posted

      Eileen

      Is not at home (Italy) she is travelling in the UK and it depends on whether she can get a signal or not.

      I know we are in the 21st Century and supposed to be a 1st  world country, but broadband and speeds, forget it, we are in the 4th world never mind the 3rd. 

      Unles of course you live in the big drain called London.

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