Coimbra Protocol for SS

Hi shaq,

No, I haven't tried it, but I'd be equally worried by the low-calcium aspects of the diet - and I don't just mean osteoporosis. (Try googling hypocalcemia.) That being said, I guess the very high doses of vit D would compensate for this, as vit D guarantees maximum absorption of whatever calcium you do take in.

As you say, you'd need to be under very strict medical supervision if you were going to try this diet. You'd also need to find a doctor who was prepared to work with you on it.

I realise you're very sensible and would never go freelance on this one, but I'd strongly advise anyone else reading this, and who might tempted to try it, not to dabble unless they're under medical supervision. It's not just your bone density that's at stake, you're messing with your electrolytes too, which can cause nerve damage - something that most of us on here have quite enough of already!

However, if you can find a doctor to take you through this, I'd be very interested to hear how you get on. 

Yes, I have not tried but I have come across people who have and reported good results. You do not remove calcium from diet. You remove dairy products and you are wrong again with gluten, you do not need to remove this. 

The reason for removing dairy products and limiting consumption of foods very rich in calcium is because by taking such large doses of vitamin D will increase your calcium absorption and if you did not than you risk hypercalcemia and kidney failure. This would also lower PTH and mess it all up since the correct dose of vitamin D for each person is supposed to lower PTH and if you take too much calcium than you would not know what has lowered the PTH. The point is that calcium is everywhere when you are able to absorb it, even in water. In fact you need to switch to water which is low in calcium. There is a lot more to say about the Coimbra protocol. I would advise you to inform yourself better rather than giving out so many wrong information.

I am looking into this and I am going to see a protocol doctor in a few weeks time. I know it is a serious step, but I am really not into chemo immunosuppressant meds at the moment.

Hi Shaq, 

I don't know anything about this diet other than what I read online -- but I think it is interesting that they recommend an egg vegetarian diet with fish -- fish, particularly the "low mercury" or "mercury-free" fish is high in calcium.  My naturopath has recommended that I eat sardines 1-2 times a week (which I have never liked, but I tolerate, and am actually growing to like -- knowing that it will help me).  Just a thought.

For the past 3 months I have been taking 9000 iu a day as I need to raise my vitamin D levels. I have been having some trouble sleeping lately and so I am experimenting with things to see if there is anything that could be contributing to this. So I have gone down to 5000iu in the past 3 days and I have noticed that some symptoms that had slowly disappeared are resurfacing. It is interesting because I am at the very early stages and I had not realised that vitamin D had something to do with it, some of my symptoms come and go. Given the amount of vitamin D that I take I am also taking K2 and  magnesium.