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Colon stricture

Posted , 3 users are following.

Maryjo
Maryjo

Have uc 25 years with usual symptoms...bad years and fair years with it....but never great !

Anyway had routine colonoscopy .....4 years since last.....30 cms in he discovered stricture and could get up no further. Took usual biopsy and he said I will have to have surgery. Back in 2 weeks for results....obviously anxious about them . Anyone had stricture ...surgery for same

0 likes, 14 replies

14 Replies

  • jill18833
    jill18833 Maryjo

    Posted

    Hi MJ,just wanted to say good luck for tomorrow,let me know how you get on xx
    • Maryjo
      Maryjo jill18833

      Posted

      Hi Jill.....Thankfully all went well today.....biopsy was clear but he has advised me to have total colectomy   as my stats for cancer r getting higher every year. My uc is still moderate to severe activity so doesn't look as if it's settling any time soon. Big decision to make and lots thought to go into it but at least biopsy clear . sorry u prob didn't c other message from last nite as I had wrote it to myself lol x
    • jill18833
      jill18833 Maryjo

      Posted

      Hi MJ,sooo glad biopsy was clear..can only imagine how anxious you were. Re advice for op,like you say lots of soul searching/research to do. Did you get any feedback from others with stricture? Is op the only way forward? If you do decide to go for it at least no more UC. Please keep in touch xx
    • Maryjo
      Maryjo jill18833

      Posted

      Thank u ...reading already...there r actually some studies say stats don't rise much higher but will hav to look further into that. Hav decided to giv my brain a rest few days from it all ....nobody has actually got back to me re stricture !!! So will keep u posted re my thoughts...let me no please if u hear or read anything re it ...when u bac from ur break or mayb u bac already ? Xx
    • jill18833
      jill18833 Maryjo

      Posted

      Will keep eyes peeled for any info on strictures MJ and let you know. Still away at mo but was having daily cramps and were considering returning early! Touch wood settled down more now so we will stay on a bit! Upped meds in case a flare was imminent,these cramps drive me insane! Don't seem to be food related Praps wind!!! Take care xxxx
    • Maryjo
      Maryjo jill18833

      Posted

      Did u try loperamide for that or did I say that b4 to u. Can't remember. What meds u on at mo. Hopefully it won't spoil ur time Ther . Xxx
    • jill18833
      jill18833

      Posted

      Hi MJ,really don't know what causes my cramps! Tried ommiting loads of foods etc..doesn't seem to make any difference. Had quite bad daily pains for week or so and wondered if it was immflamation. No blood,urgency just bloating/pain. Upped Asacol from 16mg to 2.4 and added enema for a week. Been lot better but feel it could be gas/slight constipation related so am starting Dulcolax tonight and will see how it goes. Don't like upping the Asacol without more symptoms ??? Enough of me,how you doing?? Xx
    • Maryjo
      Maryjo jill18833

      Posted

      Hi Jill....yeah could b inflammation . And it's a case of trial and error to c what might work to relieve symptoms. Hope that one works for u.  Yeah I'm good ...just reading away....some of american literature will say that cancer risks with uc don't actually rise that much so. Don't no what to believe ! U r damned if u do and u r damned if u don't...a wee miracle would come in handy lol xx
  • Maryjo
    Maryjo

    Posted

    Hi Jill.....Hope all is well with u. Thank u for ur thoughts and of course I will keep u posted. I am actually only coming round from that last colonoscopy. Really took lot out of me physically....older u get harder it is lol xx
    • Maryjo
      Maryjo

      Posted

      Hi Jill.....Quick update to say I got apt for Monday with surgeon...didn't expect it so quickly....he's doing sigmoidoscopy pre apt ....yet another examination but at least it's a quick one so will let u know how I get on x

      MJ

  • jill18833
    jill18833 Maryjo

    Posted

    Please let me know how you get on MJ,sure all will be fine.Good to get another opinion? Take care and good luck xxxx
    • Maryjo
      Maryjo jill18833

      Posted

      Well seen surgeon who has advised ileostomy as opposed to jpouch.He reckons it doesn't go as well for older people and has roughly life span of 20 years leaving me about 80 and if I'm still about don't think I would fancy more bowel surgery at that age lol. He was nice guy in his 40s with lot of these type operations behind him. Am meeting up with him and stoma nurse in couple weeks and he's planning surgery for 4-6 weeks eeek 😱 So probably need to start getting myself ready physically and mentally ! X MJ
    • jill18833
      jill18833 Maryjo

      Posted

      Hi MJ,glad you had nice surgeon to put mind at rest. Sounds like good advice and best it's quickly over and done with .please keep in touch with me and will be thinking of you xxxxx
    • Maryjo
      Maryjo jill18833

      Posted

      Hi....yes gives one some confidence. Yeah it's better done and especially coming into spring summer when weathers improving ,the form is better and u feel up to coping better with stuff ....I hope lol. Yes I certainly will keep u posted and keep loads positive vibes my way please xxxxx
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