Colonscopy clear, getting frustrated :(

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Hi everyone, I hope this is the right place.

I had a colonoscopy done in June due to symptoms I have - diarrhoea, bleeding from rectum, cramps, nausea, low grade fever, swollen glands, sore back and stiff and sore joints. Outside the digestive symptoms I feel completely ignored. The focus has been on those.

Anyway, I had the colonoscopy done, I had to chase my results as they were lost. Eventually heard back and was told non specific inflammation. I finally had my follow up appointment today and was told all was normal and they can't do anything for me. I have an appointment January 18th with gastroenterology.

I am just so frustrated with the whole thing. I've had symptoms for a few years but since the start of this year they've gotten a lot worse. Blood tests come back as CRP slightly raised, kidneys good, the rest satisfactory. These are the same results the past 3 times in the past 6 months. I've had calprotectin done twice (clear both times) and the FOB board done with the 3 samples. Clear as well.

I am not lactose intolerant or gluten intolerant. No parasites. All those have been checked. I'm annoyed that after them losing my results I'm still no further forward. I'm exhausted. I work 20 hours in a physical job and I do nothing but it and sleep. It's starting to affect me mentally. My whole body aches every evening and I constantly feel rundown. I don't even know if gastro will be able to help me. Feeling extremely frustrated and I'm sick and tired of being sick and tired! Amy suggestions or just wait it out for the next month? I have mebeverine but its like eating Smarties. No help to me at all .

Many thanks.

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1 Reply

  • Posted

    All of your symptoms in my opinion sound very much like those of ulcerative colitis. You must push to see a specialist again as soon as possible. as you say, you cant go on living like that. Uc is a horrible condition, but there are ways of treating it that will be suited to you. I wish you good luck.

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