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Colposcopy biopsy results

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jodie_N
jodie_N

Hi

Im sorry if I dont make much sense writing this, but im in a bad way and just need some advice sad

I had my normal smear done in January, and the results come back as severe dyskayosis, so an appointment was made for me at my local hospital for 3 weeks ago, I had the colposcopy done and LLETZ the same day, I also had a biopsy taken, I was told the results would be back in 5 weeks and I would recieve the results by post.

 Any way today (3 weeks later) I recieve a letter saying an appointment has been made for me to see a different specialist at a different hospital for wednesday 4th June. It says a colopscopy can not be undertaken if I have a period and to reschedule the appointment. It mentions nothing of results! I phoned up my local hospital and they said they may wish to discuss the results with me and thats why I have been sent a letter!

Surely this must mean something bad is wrong as I have to go back and discuss my results sad I cant stop crying, I have a 6 year old Son and im just so frightened they will say something bad. Why havent they said its to discuss my results in the letter? I feel sick with worry and no one at the hospital is giving me any answers, just telling me its "probably to discuss my results".

I also had a letter yesterday that was sent to my doctors saying "Colposcopy today was satisfactory, the whole of the the transformation zone was visible. There were some areas of punctation with acetowhite changes of high grade density were seen and therefore after local instillation of Lignocaine with adrenaline, the high grade lesion was removed with some problems with stopping bleeding"...............what does all this mean sad I thought it sounded positive and that it had been removed..

 Im petrified of the results, I just dont know what to expect, but im expecting the worse :,(

 Thank you for reading this

 Jodie x

0 likes, 20 replies

20 Replies

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  • tally60469
    tally60469 jodie_N

    Posted

    Hi Jodie 

    Im so sorry to hear your having a hard time with this, I am following your path at the moment, Ive got my colposcopy in the first week of July and am stressing about having the first bit done, so well done for getting through that. 

    I have a 7 year old daughter so I understand your fears.

    From what I understand, they have done a see and treat on you, the transformation area is the abnormal cell area, so its good that they could see the whole zone without you having to have a cone biopsy. The main lesion has been removed but maybe they couldnt do it all at once and you still have some stray cells to get? Or now they have removed the lesion, they have to keep seeing you to make sure the abnormal cells dont come back, my doctor said the 2 ways they keep a check are more colposcopys or more regular smears, my step daughter has luekemia and if they even suspected cancer you would be straight into hospital, no 3 weeks waiting for a letter so I doubt its that.

    Chin up and hang in there, Im sure they are just being thorough which is not a bad thing, please let me know how you get on and good luck xx

  • jodie_N
    jodie_N

    Posted

    Hi Tally

    Thanks for your kind words, you put me at ease smile its always nice when someome can explain things.....im just in a trance at the moment and cant think straight sad

    Im sorry to hear you are also going through this, Tally I was dreading the procedure but I promise you its really not that bad smile a bit embarrassing but it didnt hurt at all, in fact I felt nothing and the nurses were wondeful too....

    I hope it all goes ok for you too, the worse part by far is the waiting and not knowing, ive made myself sick with worry and now this letter for another appointment that explains nothing and hit me like a ton of bricks!!! I try not to fear the the worse but I just cant help it 

    Thanks again xx

    • tally60469
      tally60469 jodie_N

      Posted

      Have you got someone who can go with you? I always find it better if someone is there with you? Bless my 7 year old, she wants to come to the hospital with me, but I just think its too much for a 7 year old!! Im a single mum so Im taking a friend with me. Its not long now till Wednesday, its just one day, like giving birth and then it will all be over!! Keep in touch and let me know what happens
  • jaqqui1969
    jaqqui1969 jodie_N

    Posted

    Hi Jodie

    as Tally said try not to worry.  It's hard I know.

    im waiting for my referral to complete for my colposcopy and have spent the best part of my evenings googling (not sure if so much information available is a good or bad

    thing)

    im im a single mum (son 15). My parents are the other end of the country so I'll be going it alone' ;(

    let us us know how you go xxxxxxx

     

  • jodie_N
    jodie_N

    Posted

    The waiting is the worst part I think, the not knowing what is going on with you.....I feel physically sick and none of its making any sense.....why do I need to see a different doctor at a different hospital, why cant the doctor who performed the colposcopy tell me the results!! Also I thought if it was something bad, wouldnt my GP tell me!!! I feel in a mess at the moment

    Good luck with your Colpscopy Jaqqui, I hope it all goes well, and try not to worry (cant even take my own advice) xxx

    • tally60469
      tally60469 jodie_N

      Posted

      A friend of mine is going in tomorrow, she has waited 18 weeks for her appointment and although she lives in York they said they couldn't get her in there and so she has had to go to Harrogate, maybe a similar thing has happened with your appointment so they are sending you somewhere less busy instead of waiting?

      I went to my gp last week as I've trapped a nerve in my back and my doctor didn't even know I had a colposcopy appointment,  so I'm not surprised yours won't give you the results, they probably don't have them!! 

      Hang in there, the waiting will soon be over, I've got another 4 weeks yet, I'm just trying not to think about it!!

  • jaqqui1969
    jaqqui1969 jodie_N

    Posted

    I've been referred for the colposcopy due to Doc saying my cervix was covered in lesions.  This was noticed when smear was being taken.

    the smear result still hadn't arrived. I'm expecting this week.

    this week will determine if I go through general NHS or BUPA. It depends on how long the appt is with NHS

    im lucky to have the option wink

    ill update ate when the result arrives.  But deffo dreading the colposcopy sad 

    • tally60469
      tally60469 jaqqui1969

      Posted

      Hopefully your results will arrive soon and you can get your appointment sorted out, I think we all know what we are in for thanks to Google! !  It's a pity you have to go alone, but at least you can share on here and get it off your chest xx
  • jodie_N
    jodie_N

    Posted

    Ok, well just been to see my GP, its not a mistake sad the biopsy showed that it was stage 1a1 cancer, they are hoping it has all been removed but I need another colposcopy to make sure, they will most probably perform another LLETZ too, if its not all been removed, then a simple hysterectomy may be offered.....he couldnt say too much as he said its not his field, he said try and remain positive and that they have noted that the area had been removed....

    OMG im just in shock, not sure how to feel!! He said stage 1a1 is the earliest form xx

    • tally60469
      tally60469 jodie_N

      Posted

      Oh Jodie! !!! Crikey o Riley,  deep breathe....

      Well, I suppose technically since we all have abnormal cells which has lead to the colposcopy in the first place, cancer was an option, the good news is, now you know and from the sounds of it they did a see and treat and it worked, so you should be all clear, they just need to keep checking you to make sure the cells don't grow back, I'm not sure telling you that if your not clear a 'simple historectomy' maybe offered, I don't think there's anything simple about a historectomy ever!!

      Fingers crossed for Wednesday, the news we are hoping for is, they got it all and you just need regular check ups, and even if it's not the news we are hoping for, you have caught it at the earliest stage possible and it's very treatable, it's a lot to get your head round, I'm around if you want to chat xx

  • jodie_N
    jodie_N

    Posted

    I kept phoning my doctors to get some answers and finally he told me to go in and he would let me know what was going on sad at least I know what im dealing with now!!!! xx
  • jodie_N
    jodie_N

    Posted

    Ok, where do I start!!!! The good news is I went for my smear when I did! If I had left it longer than it would maybe be a different storysad

    I do/did have VERY very early stages of cervical cancer (0.4mm), they are pretty confident that it has been removed by my last LLETZ procedure, but I do need another procedure (LLETZ) done to make sure it hasnt gone up any further as my biopsy result showed GCIN (what is this), the consultant is confident its not gone further but he has to make definite sure. He didnt perform the LLETZ today as it was only 4 weeks ago since my last and as I bled a lot he said it would be safer to do it in 2 - 3 weeks time (4th July).

    He said that it will most likely come back clear but they will keep an eye on me, he said if it doesnt come back clear, then a possible simple hysterectomy will be offered, instead of a total hysterectomy! He then went on to say if they do still come back clear I will still be given the option of a hysterectomy if I have finished with my family!! I have one 6 year old Son who is AMAZING, my husband and I lost two babies to miscarriage before our son and have always seen him as our miracle...

    We have said we probably wouldnt have anymore children but its the fact if I chose to have a hysterectomy then I will never have a"choice", on the other hand I wouldnt want the cancer to come back and something happen to me and I leave my Son without a Mum....im 33 and my husband is 37.....I think I need to put my health first and rid this horrible disease from coming back as I would be at a higher risk of it coming back....the consultant was brilliant, he also said its a lot to take on board but in all honesty if I were his wife he would say to have the hysterectomy even if the results come back clear!!! 

    All in all I think it was a good result??? Not too sure, I feel as if a big weight has been lifted but I know im not out of the woods yet as this GCIN showed up!! Im trying to stay positive though, but at least I know the next steps....

    Im just confused about what to do!!! I thibk health is way more important, and I kind of did get the idea of having another baby out of my head, as my husband didnt really want another one and I was scared of going through miscarriage again.....God its all so confusing and such a worry

    Thanks for caring, and I hope this all makes sense....he did explain GCIN to me but my heads in a muddle right now, and im still not sure what it meant and if its bad sad

    Jodie xx

  • jodie_N
    jodie_N

    Posted

    Sorry CGIN not GCIN
  • jaqqui1969
    jaqqui1969 jodie_N

    Posted

    Oh Jodie

    im so sorry to hear this.  However as you said good job you had smear when you did.

    keep in touch chick, hugs xxxxxxxx

    sad Still waiting on my appt

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