Coming off benzos, ugh!!!
Posted , 6 users are following.
Anyone else had to come off benzodiazepines? It is awful. I was on ativan for 6 months and now trying to come off. I've had panic, sweating, etc. Really bad. All my feeling are coming back about losing my mom. Any advice?
0 likes, 51 replies
magmag1116 Jen12345678
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pauline00568 Jen12345678
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samuels Jen12345678
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I was taken off Alparazolam last week, this time no tapering, I went to get my usual authority prescription and my new GP said she will no longer be prescribing them for me, that comment gob smacked me, no further weaning, she gave me 10 tablets and said come off them how you see fit, within 24 hours I was in withdrawals, they are horrendous, I had been taken off them several years ago by another doctor, she followed the Benzo protocol but the same happened even with the aid of Diazapam (Valium) this had no effect on me for relieving withdrawals.
now the thing is with Benzo's, they are designed for panic/anxiety and agoraphobia and not depression, the 2 work on different receptors, anti depressants work on the serotonin, which in my opinion has nothing to do with panic/anxiety ( serotonin) where as the benzo's work on the gabba receptors which help us regain great control over our panic/anxiety. Dr's are extremely reluctant to prescribe benzo's because of abuse and addictiveness, if used as directed it is a wonder drug. 6 days off alprazolam,not completely to be honest, I took 1/2 of a 1mg tablet at night but did nothing, 2 trips into our emergency department due to the horrible withdrawals, I was able to track down one of my old GP's and explained what my new GP had done, GP just shook his head , got an authority for me, am now back on alprazolam, into day 2 and my life is back to normal again, I'm not housebound and the panic has gone and I can also go to town, local shops etc etc again.
I have been on alprazolam for 22 years, without them I have no social life, I get housebound and of course the rebound panic attacks. I would love to stay off them but unfortunately I can't function without them, by that I mean, yes sure I was dependent on them, addicted if you will, but hey look at all the other medications out there for other health conditions, they are addictive or you have to be weaned off them, some examples, certain blood pressure medications ( calcium channel blockers ) anti depressants , Lyrica, the list goes on.
In your situation I would suggest you touch base with your GP or mental health team in regards to your situation, in your case I think the benzo's are only a short term solution for you, but hey I'm not a psychiatrist or psychologist , if they think that's the medication you need to be on, so be it. Hope this has made sense to you and has helped you in some way.
magmag1116 samuels
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pauline00568 magmag1116
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Jen12345678 samuels
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Thank you for understanding! I agree that Drs should give out medication if it's needed!! A lot of meds are addictive in some fashion, yet they can't give out benzos, I don't get it! Glad you feel better!!
magmag1116 pauline00568
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samuels magmag1116
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You would be dependent on them as you say but not addicted pur say, if you know what I mean ? the medication is helping, it is doing what it is designed to do.
coming of benzo's especially in yours and my case can take up to 2 years sometimes longer and should always be around a 1/4 at a time over a certain time frame. I have been on them for 22 years and like you my life is back to the panic/anxiety and agoraphobic state without them, there is a place for this medication, the main points are correct supervision by GP and not some hierarchy in the PBS (that's what it's called where I am from) deciding whether or not I should be on them, never abuse them as you well know they are life savers. if you are unlucky to have to get a new GP and is dead set against addictive drugs and takes you off them even if you have cut down to taking you off cold turkey when they know that they should be cutting you down further first, I was down to 1 and a half tablets daily for 6 months, new GP comes along and says that's it they aren't writing scripts for anymore is really unprofessional, they should of reduced that 1 and a half down to one and a quarter, not cold turkey.
magmag1116 samuels
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pauline00568 magmag1116
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pauline00568 Jen12345678
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magmag1116 pauline00568
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samuels magmag1116
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Yes, after the rebound anxiety settled, full blown panic attacks and agoraphobia returned, well I shouldn't say full blown this time as I was only off the Alprazolam for 5 days, I had to take 1/2 of a 1 Mg to take the edge off, no good, had to return to original dosage. I am now back to a reasonably life again after being back on them for 4 days, anxiety has now gone, I can now get out of the house again and do my daily work around the house, I am on a pension so don't work.
samuels pauline00568
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Exactly, this medication can take anything up to 2 years to be taken off correctly, especially long term users, and then there's also a lot of other major withdrawal effects, convulsions is the biggest one, however I did read the incident rate for convulsions are relatively low.
magmag1116 samuels
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samuels pauline00568
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Not really, they have saved my life, not in the sense of suicidal, in the sense that I was able to get rid of the panic/anxiety, I did overcome the agoraphobia but had a relapse, although this time I wasn't restricted to the house, just frightened to go out or travel alone, several years ago the agoraphobia was worsened as I had a heart attack, cardiac rehab told me this is a natural and common occurrence in a lot of heart attack victims. Benzo's are the only way to treat anxiety as that is what they are designed for, not anti depressants , unless you are unlucky enough to have depression with your anxiety, well then the anti depressants have their place in that department, well that's just my opinion and only some of the medical professions , as we all know the Benzo's are addictive and doctors steer clear of them for that reason, I'll give you another reason as to why they steer clear of the Benzo's …. paperwork and having to answer to the relevant authorities as to why you are still on them after 3 months, doctors hate filling out that paperwork, it's far easier for them to taper you off as they see fit and try you on a new medication.
samuels magmag1116
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Thankyou for your thoughts
.
I am back to normal thanks to the Alprazolam, the only exception is still the agoraphobia, unable to travel alone, other than that sticking point I'm back to normal. I forgot to mention that everything you learn from the psychologists and psychiatrists are also an integral part in recovery, cognitive behaviour therapy, exposure, breathing and relaxation techniques along with medication.
I wouldn't say harmful to our brain, it hasn't fried mine, thought patterns haven't changed, maybe slowed a little due to old age
, apart from a couple of other health issues I'm just as healthy as the next person for my age. you want to talk about medication destroying our brains …… keep well away from Lyrica and Cymbalta amongst quite a few others, they are really bad news.
magmag1116 samuels
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pauline00568 magmag1116
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magmag1116 pauline00568
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I take 75 mg in the morning and 75 mg at night . According to my private psychiatrist, Lyrica has an off label effect on anti-anxiety and he said such drug is not addictive 😑
samuels magmag1116
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Can I offer some advice ? please …. please research Gabapentin and Lyrica, it's extremely hard to get off and it is also being used for a recreational drug in the UK. It has no effect on anxiety, sure it may help for the first week, after that , not nice.
samuels pauline00568
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pauline00568 magmag1116
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pauline00568 samuels
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http://roguemedic.com/2010/06/scott-reuben-m-d-sentenced-to-6-months-in-prison-for-fraud/
pauline00568 magmag1116
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samuels pauline00568
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There was another researcher found guilty, I'll try and find his name, it was a foreign name but a citizen of the USA
samuels pauline00568
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Actually it is, if you are talking about Lyrica, extremely hard to come off and destroys the brain, amongst other organs. It is used as a recreational drug, why no one understands but is a common street drug in the UK and just starting in the USA, a lot of doctors are starting to refuse prescribing Lyrica now because of it's horrendous side effects.
samuels
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pauline00568 samuels
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samuels pauline00568
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pauline00568 samuels
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pauline00568
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pauline00568 magmag1116
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pauline00568 samuels
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pauline00568 samuels
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lyrica and its sister drug Neurontin are unresearched drugs and are originally prescribed for epilepsy. They have very nasty side effects including cortical myoclonus and long qt syndrome as well as suicidal ideation, suicide, severe depression and anxiety, chest and urine infections, neuropathy, ear problems, the list is endless.
pauline00568
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samuels I don't know why my reply is being moderated. I agree with you that lyrica and Neurontin are nasty drugs. I got cortical myoclonus and long qt syndrome from lyrica. Both drugs are prescribed for epilepsy but as per usual now being rx for all sorts of things. More profit for Big Pharma.
pauline00568 samuels
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https://www.migrainetrust.org/about-migraine/types-of-migraine/other-headache-disorders/medication-overuse-headache/
magmag1116 pauline00568
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magmag1116 pauline00568
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samuels pauline00568
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Exactly and that's why I refused Lyrica, Cymbalta and any anti depressants
samuels pauline00568
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No they aren't if taken as instructed, how would you heal a person with a rather complex nervous system condition ? when all medication to treat the nervous system has been tried, CBT, rapid eye movement, relaxation, blah blah, the last line of treatment that is left is a strong Benzo, it works and has worked for ages, you would rather take a patient off them and ruin their life again and suffer the horrendous withdrawals ? You never mess with a medication that is working, that is just plain ignorant and stupid. We both know why doctors want their patients off the Benzo's, less paperwork, can't be bothered calling for an authority number to fill a prescription and what the newest generation of doctors are taught at Med school, also governmental pressure !!
pauline00568 samuels
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drs are now realising the dangers of benzos, anti depressants etc. U n4rd to read the NICE Guidelines. I note your dr rx anti depressants during pregnancy???????
pauline00568 magmag1116
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Drs are not allowed to prescribe benzos for more than 2 to 4 weeks now.
pauline00568 magmag1116
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I am not 'enraged' as u put it against pple taking benzos and lyrica. Have u suffered at the hands of these drugs? I think you need to research these drugs before passing judgment on other people and making subjective comments.
pauline00568 samuels
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pauline00568 samuels
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Sorry don't follow your logic.
Drs are now aware of the dangers of benzos and ad so less inclined to prescribe. Nothing to do with pressure, can't be bothered etc. This is grossly inaccurate of you to criticise drs like this, benzos take ages to wean off and also the many wd signs and symptoms can take two years or more to go away. Pls research to confirm what I am writing.
pauline00568 samuels
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pauline00568 samuels
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magmag1116 pauline00568
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samuels pauline00568
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No it's the truth, whether you like it or not ! It's not grossly inaccurate. If you have been on the strongest Benzo group for 22 + years it can take up to 2 years to be completely weaned off of them( at least you appear to agree on that one- 2 + years to be weaned ) I suggest you have a very good long hard talk with your psychiatrist, not your GP but your psychiatrist.
I also recommend you research this medication a lot more, I don't and have never claimed to know everything about this drug and I still don't, I do however know for a fact that if it helps and long term sufferers have been on them most of their lives you don't interfere with it unless they are 99.9% the new medication is going to work better than the particular Benzo a patient is on.