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Hi - my name is Allan, I am now 53, back in 2008 my thyroid went overactive, then went underactive - they was going to "nuke" (Radioactive Iodine) it but did levels and they were normalish so didn't do anything but said because it (thyroid gland) was damaged it would eventually go underactive.. Took a few years before levels dropped on paper before they started me on on Levothyroxine, 25 for a while, then 50, recently 75.. In this time I have gone from a 28 waist to 32, from a size small shirt to some of my shirts are a Large and I look pregnant, have all the symptons and more, I dont drink or smoke, watch my diet, am active, gave up choc & cake/crisps etc for 2 months Jan - Feb and put on a 1lb, before 2008 I was just under 10 stone and had been for the previous 10 years, no history of it with any family members, (am 5ft 3) I am now a couple pounds under 12 stone and cannot shift it, GP just says everything looks ok on paper - so have started looking into side effects of Thyroxine and coming off it (it is the only medication I am taking so cant blame it on anything else) there are other reasons on the net why the Thyroid went off the rails in the first place - one possible casue is a "Stress Event" (have had many) - there are a few other reasons out there which you would need testing to verify, so you need to take stock and realise this medication is making me/you worse, I thought when my thyroxine was increased I would have more energy, the weight would drop off - the opposite, I feel worse, depressed, brain fog, weight going up etc so I have decided to wean myself of these awful mediaction. Suggested this to my GP (Dr) 1 said - you have no thyroid gland left (I have had no scan so how do they know?) and the other said - we should increase your dose, not happy with either of those options... I have/am dropped to 50 from 75 for a week, then going to 25 for 2 weeks then 25 every other day then intend coming off it completly, I have increased my intake of Vit C (500mg tabs) to 2/3 a day to boost my immune system and I believe my body will heal itself. I took myself of citalapram - as one of the side effects was coughing and I coughed every waking moment and also took myself of statins as they are a dangerous tablet - look on youtube - things they dont tell you about statins..
Has anybody else out there taken themselves off Levothyroxine?.. Any tips of things they could reccomend?... Thanks
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