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Coming off pred

Posted , 11 users are following.

kathleen21605
kathleen21605

hi all I was told to reduce pred 1 mg a month, every thing seemed ok when I was on 2mg a month. At the beginning of this month down to 1 mg, since then have suffered all the pain back again feeling sick all the time, no appetite. It really feels like it was when I was supposedly misdiagnosed. Any help would be gratefully received. I will be contacting the Dr tomorrow to see if this is withdrawal symptoms and how long does it go on for.

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  • kathleen21605
    kathleen21605

    Posted

    I can understand how you feel. After the dreadful week I've had very painful and feeling sick I really don't want to drop to 1mg again even though I didn't want to take them at the beginning. When I was told it wasn't pmr but arthritis I was angry to think I had taken these tablets for a year. I believe now I do have pmr with arthritis as well. I have an app at the blood clinic next week so will get an up to date reading of inflammation.

    • Anhaga
      Anhaga kathleen21605

      Posted

      My CRP was something like 11 last time, (here 10 and below is considered good). A year ago I think it was 7, lowest it's ever been. Doctor tells me to go by symptoms, she's always told me this. It was my idea to experiment to see if what I was feeling now was "only" OA. Considering how much worse I began to feel I think it is more than OA. And I've certainly given enough time for withdrawal symptoms to have gone. I have known I have OA for many years, and have the x-rays to prove it.

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