coming off venlafaxine?

Posted , 115 users are following.

I have been taking venlafaxine for over 7 years and can admit that it saved my life a few times in the early stages. I have tried to come off them numerous times,during the past 3 years but have failed every time. The gp honestly dosent know how to help, cut down slowly, miss every other dose...I've tried everything. The side effects of withdrawal are horrendous...shaking, sweating, panic attacks, sickness, violent outbursts, suicidal thoughts. Ive read all the horror stories and truly feel sorry for anyone who has ever taken ven. I'm desperate to quit them but it seems impossible. Any advice would be much appreciated!

13 likes, 362 replies

362 Replies

Prev Next
  • Posted

    I took this vile drug for more than 12 years.  I was at 375 mg a day for the last more than five years.  Ten months ago, I began tapering off under supervision because of side effects from another drug.  I went cold when I fired the psychiatrist who put me on that crap.  That was six months ago.  I wish that I could offer encouragement but I cannot.  My life has been ruined by this drug and that psychiatrist.  So, six months in and I am still experiencing symptoms.  I cry all the time every single day, often for no specific reason and in public.  In six months, I have not once gotten more than 3 or 4 hours of sleep in a 24 hour period.  I am exhausted.  I am impulsive, constantly angry and, of course, very depressed.  I can no longer sustain personnal relationships.  I am having panic attacks multiple times daily.  I am paranoid and terrified most of the time. I can't describe the isolation, the despair that I feel.  Quite literally, no one -- including doctors -- knows what it is like to withdraw from this drug.  Doctors have no idea how long it takes to return the brain to its (so-called) normal functioning.  For the most part, they cannot even tell you what to expect while withdrawing.  Expect hell.  My experience is that psychiatrists and GPs cannot effectively treat depression.  Period.  They throw drugs at their patients -- like cooked spaghetti at the wall -- hoping that one will stick and have a positive effect.  And if it doesn't?  Well, there are always more drugs to try.  I will not take anti-depressants again.  I will never again put myself under the control of a psychiatrist.  I've suffered depression since childhood.  I've tried every thing from endless talk therapy and drugs to electroshock therapy.  Nothing has worked.  I recognize, finally, that I am alone and beyond help.  As I said, I wish that i could offer encouragement, but I cannot.  I fear that this drug alters the brain permanently and that there is no real recovery.  I know that it has destroyed my life.

     

    • Posted

      Oh no, Maureen that's awful. I'm so sorry you feel do alone. Do you have any family to help and support you?

      I don't really know what I could say to help you. 

      I have been in therapy for 6 months now, constantly. Group therapy and 1:1 sessions have really helped me, I'm still seeing my therapist now although I am off Ven. My therapys been at the Priory in Chelmsford, I cannot reccommend them enough. I've seen a few different ones there for different things and they've all been a great help. Not to mention the people who were participating in the groups - hearing, learning and listening to their stories and suggestions was unimaginably helpful too.

      I agree with you, I will never again take anti-depressants. I fought against the doctors for so long as I hated the mere thought of taking them but finally felt so depressed I caved. I wished id have stood strong but was very fragile at the time.

      Anyway I'm hoping the withdrawals will keep fading and I'll one day be the old me again.

      I wish you luck. I truly hope you find some peace and happiness in your life xxx

    • Posted

      Maureen, you are right! It does alter the brain and I too wanted to die when I had come off the drug. I was drug free for 6 months and within that 6 months my anger was uncontrollable, crying and I could not understand relationships or humans. I have now got a criminal record for grabbing my ex partner by the shirt because of my anger...I would recommend anyone who has been prescribed this drug not to take it in the first place....it's hell!
  • Posted

    Check out drugs .com  search for getting off Effexor xr.   Some good info there.  One person cut back 15mg. per day for a week or two at a time and had no issues.  You have to go very sow.  I am starting today.  I hate this!
  • Posted

    Hey,

    I'm not sure I have anything to add that will help people, but I have read through a lot of what was in here over the last year and it helped me a lot, so thanks.

    I was taking Citalopram for 5 years and then when that didn't work for me anymore I got moved onto Venlafaxine for the next 10 years.  I started on 37.5mg and moved up to 150mg which I was taking for the longest period of time.  I've always wanted to come off these tablet but I ran into various issues when trying.

    I now haven't taken them for about 4 weeks and most of the side affects have gone although my anxiety and depression have returned, to a minor degree, I certainly feel I can handle it at the moment and I have no plans on teturning to that drug.

    When coming off Venlafaxine and got severe bouts of shaking, panic attacks etc etc I would actually run out of work and head to the pub for a couple of pints, not great I know, but this calmed me down enough to go back in and try to complete the day, and now I no longer need to do this.  Very much not recommending this to anyone, for obvious reasons!

    But I am so pleased to have come on this forum rather than keep listening to my GP.  I didn't tell my GP that I was coming off, I just kepts breaking the tablets in half for a while then breaking into quarters etc.  When I finally told my GP that I was taking the lowest dose and planned to stop altogether, their advice was to switch me to another tablet, which I declined.

    Anyway, good luck to anyone trying to come off these, it is very much possible and just try to do it slowly (and preferably without the pints)

    Richard

  • Posted

    Hi, I found this discussion whilst googling how to come off venlafaxine. I've been taking 150mg slow release tablets for 18 months, and tbh I don't feel it is helping. I used to take fluoxetine in the past, but it was making me a bit too manic (I have bipolar depression), although I was managing the manic phases by keeping busy. But since I've been on the ven I have been feeling really low, I have no energy, I am not sleeping at night and I have put on 2 stone in weight, which is making me even more depressed sad So I've now decided I want to come off it, I saw the doctor just before Xmas and she prescribed 20mg fluoxetine to take in addition to the ven, but leave a gap between doses. I've been ok until I take the ven, then I have the sweats, dizziness and insomnia - which I was having without the fluoxetine anyway. I cannot get to see my doctor until next week, but I've had enough and I've decided to start reducing the dose, but I am really scared of the withdrawal. Any tips to help me cope would be very much appreciated, thanks smile
    • Posted

      This worries me quite a lot.....my doctor would not let me go into fluoxetine until I was down to 37.5mg of Venlafaxine as this is highly dangerous mix of SSRI's ans SNRI's
    • Posted

      I tapered from 225mg to nothing and it was horrendous. I took omega 3,6 & 9 which helped with the dizziness. It's something you have to go through to get off this terrible drug. Good luck and be kind to yourself x
    • Posted

      The doctor told me I had to take the fluoxetine in the morning and the venalfaxine at bed time. Yesterday I took half a tablet at tea time, instead of one at bed time, I was fidgety and restless till about 1am, but when I finally fell asleep I slept the longest I had done for a long time. I took 20 mg fluoxetine this morning, and apart from a few hot flushes (despite the cold weather) I seem to be ok. I've warned my husband in case I start acting out of character.
  • Posted

    Hello. Im new to this Internet forum stuff but afyer my with drawels coming down from effexor I wandered if anyone else was the same. I have only been on effexor for about 10 months. In that time I started on 75mg, went to 150mg, back to 75mg and then two days ago started 37.5mg. I was never depressed but just feeling down and tired all the time so my doctor suggested I start on anti depressants. I feel this was the worse decision ever! Its helped slighty but I never imagined coming off would be like this. I'd been warned coming off would be hard.

    Anyway my question to everyone was, after starting on 37.5mg two days ago I had the worst possible night imagineable.

    its summer where I am and I awoke freezing cold, chattrring, aching all over and feverish. To calm me down all I could do wad jump in the shower. I then vomited two times and just stayed freezing cold.

    I've woken up feeling a lot better but just wanted some answers.

    Has this happened to anyone else out there? It was very scary last night.

    Rache smile

    • Posted

      hi ive been on venlafaxine for 9 months and they just havent worked at all for me in fact i felt more depressed and anxious on these pills than when i was dealing with depression without medication , i was started on 37.5mg but that was increased over time to 300mg which is considered the max dose in the uk, i constantly had side effects of shivering ,feeling hot and cold , and teeth chattering all the time, sometimes on300mg they even effected my vison , gave me suicidal thoughts to the point of dispair i went back to my pysch who told me to come off them, im now tampering down and ive made it to 75mg so im nearly there , but as been said previously the side effects are really quite bad im tired all the time , very tense throughout my body, also feel like ive got a cloud of depression over me all the time.
  • Posted

    talulabelle1982... read your post where you have come off the venlafaxine. Good for you.  I've been on antidepressants over 30 years, began with Prozac.  The past 2 years I've been on ven and I am ready to get off the meds.  My Dr recommended 2 weeks. I take 37.5 twice a day.  His recommendation was take only 1/day the first week, 1 every other day the second week and then stop. My husband and I both thought that was awfully fast. So, I've been 3 weeks on 1/day.  I just wish I knew the magic formula to come off these, but I know there isn't one.  What worked for you?  So happy for you!

     

  • Posted

    I was on venlafaxine xr 225 for many years. My gp would not help me go off and now that I have gone off with the help of another psychiatrist his answer is "Well you probably can't stay off when you are ready to go back on let me know and I will give you some. " My last pill was taken the third week in February and I do not need them. I was put on for depression, panic attacks and seizures which my psychiatrist believes were all situational from living for 35 years with an alcholic husband who was abusive. Since I have come off I have had none of the above symptoms. I am still facing some sideeffects of coming off but they will gradually disappear. I started weaning in October of 2014 371/2 mg at a time and would be 3-4 weeks between drops depending on how bad the side effects were. Don't rush and don't let any doctor tell you you can do it fast. Let them go on it for as little as two months and try and wean fast then they will know better with the next patient. The side effects are bad but the results are worth it. Take a year or two to come off if you want to. You know how your body feels. I still have fatigue and tearyeyed ( but I think the last is because I am beginning to feel things rather than have my emotions blocked.) On the good side the daily nose bleeds I have had for years are gone, my Blood Sugar has dropped almost to normal for a nondiabetic and I have been on pills for diabetis for years. I have had any extra pills taken away and now I am only on basic which I think probably will be dropped. Some days my energy level is great which I have not had in years. So keep working away at it. Take it slow even slower than I did if you have to, any drop is good and if you don't start you will never suceed. 
    • Posted

      I was on VF 150 from nov 2011 to going cold turkey in Dec 2013 .. had some withdrawl issues with brain feeling like it was rattling around my skull when I turned my head, but apart from that, the benefits outweigh the month or so of weirdness!

      s.

  • Posted

    I'm writing this to tell you that my experience has been a positive one though a little challenging at times. I was on 150mg per day for 14 months. I took a full 6 months to come right off it dropping 50mg for the first 6 weeks, 50mg for the next 6 weeks, 25mg for the next six weeks and then 25mg every second day for the last 6. The first decreases were easier than the last - suffered the "brain zaps" nausea and diarhoea at the end the most. In the last 2 weeks rather than take the 25mg every second day I actually cut these in half right down to 12.5mg per day just to ease the side effects. Have now been drug free for 3 months and am feeling normal. You can do it. I would recommend listening to your body and reducing your dose slowly to the amount you can cope with. Using other drugs to help with the side effects also sounds like a solid plan. Good luck xxx

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.