Coming up to six months since acute pancreatitis diagnosis

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Hi,

Looking for a bit of adivse/share my experiences with people.

In October I was rushed to hosptial where I found out I had acute pancreatitis from too much alcohol.

I was a heavy drinker from the age of 18 and I'm now 25. I was kept in hosptial for 6 days.

I was advised by one doctor to never a drink again where as most others suggested not to drink for 6 months.

I thought I new better than the doctors and had a couple of drinks at the weekend a month after getting out of hospital. This was a bad mistake.

On the Sunday evening it started with a stomach ache which lead to diarrhoea and being sick all night and was in a lot of pain throughout the night. The pain died down the next day and I stopped being sick so didn't go back to hospital.

I learnt from my lesson and have pretty much stayed away from alcohol up in until the last couple of weeks. I have had the odd shandy on the occasional evening and have been fine.

Those who are unsure about whether smoking has an affect- I have taken up smoking weed in the last month or so which has helped with craving having a beer,especially at my age where all of my mates like a good drink. I have had no problems with my pancreas since smoking weed.

Has anyone started drinking again more regularly since being diagnosed with acute pancreatitis and if so how have you been?

6 months is coming up for me in 3 weeks and I have a stag do mid May so want some suggestions on whether people think il be alright to drink over the weekend or not?

Thanks,

Arron.

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  • Posted

    Hi Arron - It's difficult to condone or give you a blessing on drinking after a doctor told you never to drink again. Your pancreas obviously suffered a big hit with your attack that ended you in the hospital for 6 days. 

    Personally, I think you're rolling the dice with any amount of alcohol. I believe the weed doesn't help the pancreas. I think it just helps the how the brain interprets your pancreatic pain or malfunction. 

    I lost my father with pancreatic cancer at the age of 57. He was not a drinker and quit smoking 15 years prior to having any pancreatic malfunctions. I think in your case, you were blessed by getting a second chance to give your pancreas a break. Based on what I read, the pancreas never repairs itself once it suffers a big hit, or acute attack. I think as hard as it is to lay off the booze and pot, I would consider abstaining from both. If you feel your life is important to you and want to live many more years, you might want to seek some counselling as well to assist you away from the booze and pot. Honestly, I think if these pancreatic attacks continue, eventually you won't get another chance. I realize how difficult it is to give up the beers and socilaize to that level. 

    My first and last pancreatic attack gave me a 2nd chance on life. I ended up in the hospital like you and was a very casual weekend drinker of beer. I smoked cigarettes for 35 years. I know how hard it is not to have a beer at a social gathering or other events or just relaxing for the evening. 

    I think you have to decide the price you're going to pay to have a few drinks and at the same time seek some counselling on how to control your alcohol intake. 

    I wish you the best and a long, full life. If you take care of your pancreas, it will take care of you. Once it goes, there's never a second chance. Listen to your doctor, seek counseling and try somje non-alcohol beer. As far as the pot goes, I think that's only masking what's taking place in your body. Stay in tune with your body and live healthy.

    My Best Regards,

    Glenn

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  • Posted

    The 6 month rule is right, might even need a year.

    Dude i suggest wait longer, eat lowfat for a while and then try and test waters.

    If you just got sick a few weeks ago you aint ready, take this serious and wait, youll know wnen youre ready. If in doubt, you aint.

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  • Posted

    Hi,speaking from my experience of severe acute pancreatitas though money was caused by a gallstone I would listen to your doctor because believe me when I say me and my family have been to he'll and back the last 2 years including 6 month in hospital ,it is a horrible illness and I am very fortunate to still be here and had it not been for me having a pancreatic necrosectomy I probably wouldn't be,take the advice on board mate please. Good luck.
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    • Posted

      I can't even begin to put into words the last 2 years mate but for some reason I have been given a second chance albeit now type 1 diabetic but I will take that tbh . After 2 years and one month off work i am now back at work as a hgv driver which i thought i would never do agsin tbh but somehow came got there in the end.Severe acute pancreatitas is rare but it happens so take care.
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  • Posted

    You seem very young to be going through this. I'm 33 drank bottle of wine most nights in 20's spirits on weekends. I started getting upper left abdo pain 7 years ago. Not severe and no vomiting and mainly constipated rather than other way. Because of location of pain, history of alcohol and a lot of googling I convinced myself I have chronic pancreatitis. Never had acute attack though.

    I've had so many tests over last 7 years, colonoscopy, endoscopy, ct, ultrasound, tons of bloods, stool tests, MRI of pancreas and not one thing shows up. Seen about 20 GP's and 4 gastro specialists they all say it's ibs even though the pain is worse after alcohol and goes through to my back. I do hope they are right. I also struggle to give up alcohol competly and I cut right down but go through phases of drinking more. My wonder with you is that have they scanned your pancreas? Have you got divism or any hereditary pancreas problems? Because from my research most people with these issues so young do have this. (I might be wrong) I'm sure lots of young people drink too much but they don't all end up with pancreatitis so maybe it would be worth getting an MRI or ct to check it for divism because if you do have this then I would advise never touching alcohol again as it's likely to turn chronic. But if not then if you give it a year or so to heal you may be able to have the odd drink.

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    • Posted

      Hi Natalie - great post!

      At least with me, not sure about Arron, they did 3 different tests with me and also blood work, (amalase) sp .... they did an iniital ultra sound, then a colangiagram (sp) and finally a catscan with contrast. If my issues continued they were going to go down my throat and get another look from that angle. I was told my issues were due to "sludge in the gallballdder" which set off a pancreatitis. Again, with my family history, I was concerned, losing my father so young.

      Anyway, I thought your post was great..

      Take Care,

      Glenn

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    • Posted

      I can imagine you would be concerned. Pancreas issues seem to have little to none good cures I've done a lot of reading up over last 7 years! Did your tests show that it is your pancreas? I hear a few people go 10 years Plus with negative tests and then it shows up one day! I'm praying I'm not one of these people and that I should just believe my GP!!
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    • Posted

      My doctors termed it, Acute Pancreatitis - due to sludge in the gallbladder. The colangiogram showed no evidence of any problems with the pancreas or the duodenum. I went back to the surgeon 3x because I had right side pain, just under the upper rib that wouldn't go away and I remember my dad complaining about his pain before they found he had pancreatic cancer. My doctors basically said, all tests were negative for any further concern and I looked too healthy, no jaundice in the whites of my eyes, amalase count coming back down from a high of around 1200 when I first went in.

      I had my gallbladder out on Halloween and had all sorts of difficulty with indigestion (I suffer from Barrett's Esophagus) to make matters worse. I finally have started to feel good 6 months later with the help of two different meds to control the stomach gas, etc. 

      The pancreas is certainly worrisome. I think 5% of diagnosed cases actually make a recovery if cancer is discovered. It's like a kiss of death. There's no second chances, no transplants, etc.. We just have to heed the warnings our doctors give us and get  to know our bodies. I have an occasional light beer every now and then. I think fats are the big problem and smaller meals, rather than one or two big meals help.

      I'm older than Arron but never really abused alcohol and only would drink beer on weekends. Some weekends I went without and some weekends I would over-indulge. I didn't consider myself over-doing it to any degree but everyone's body has limits. 

      Glenn

       

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    • Posted

      I know I've overdone it with alcohol in the past and I do tend to turn back to it if ever I'm in a stressful time. Not drinking all day or anything but I will have a few glasses of wine on a weekday evening if I've had a stressful day. I'd love to cut it out completely but it's my only vice! Never smoked. My dads an alcoholic and I think if he can drink very heavily into his late 60's then I should be ok! Although I know it's not always the case!

      My levels are never high even in a flare up of whatever I have going on.

      Sounds like you have had a bad time of things and with your fathers cancer I can't blame you for worrying. A lot of cases seem to be linked to gall bladder. My pain always on my left side so other than my MRI no tests have looked at my gall bladder.

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  • Posted

    Hi Arron, its so difficult to know what to do when Drs themselves seem to give conflicting advise. I am not sure if mine is pancrease related and am very much like Natalie. Maybe just go as long as you can and test the water with  a small drink and then you know. My pain albeit more troublesome than painful is triggered by small amounts of alchohol. I try to abstain most of the time but sometimes have a couple of wines. People think you are crazy cos no one has told you to not drink and no one can find what is wrong with you. Every Dr just seems to want you out the door , by either prescribing omperazole or amytriptyline for every condition . Good Luck
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  • Posted

    Hi Aaron, I have chronic pancreatitis and here's what I'd advise. Stop drinking alcohol! I wish I'd have had an acute attack so I could have had a 2nd chance. I'd give anything to not have this disease, no drink is worth it! If that's what caused your acute attack, then you should never drink alcohol again.
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    • Posted

      Hi if you read my post then I find it astonishing that you would rather have an acute attack because trust me,at 15-20 per cent mortality I certainly wouldn't have it down on my list.
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    • Posted

      I think she means a warning of an acute attack as so long as you look after yourself your pancreas can heal from acute attack. Chronic is incurable and painful every day of your life. No going back. So if she had acute attack first she could of looked after herself and stopped it ever going chronic. I'm sure she wasn't wish to have one or any of it!
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    • Posted

      I well if that's the case then I apologise, can't help it just about getting my head around everything that has happened some days I think I'm over it and others I just cracking up all of a sudden,I was just making he point I wouldn't wish it on anyone 😕
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    • Posted

      I totally understand I've read a lot about it over the last 7 years of worrying I have pancreas problems and none of it sounds very promising. Even other cancers can be cured but chronic pancreatitis doesn't seem to have many options of treatment. It is a very depressing disease and I'm the same some days I try to believe the docs that my pancreas is fine and continue a normal life but other days the twinges and pains really get me down and I'm back on google reading up and freaking myself out. I do really feel for you its such a waste of our lives and very unfair
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    • Posted

      I know and I am now type 1 diabetic as my pancreas doesn't exist anymore and while not being ideal I will take it to still be here which very nearly wasn't the case,in fact had my consultant at Manchester not performed a pancreatic necrosectomy I probably wouldn't be. Good luck x
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    • Posted

      I'm so sorry to hear this. I'm glad they managed to save you! Life can be so unfair. Just such a shame that no surgery has been found to give pancreatitis sufferers a completely new lease of life. Like a pancreas transplant! Maybe in years to come but too late for us! Wishing you all the best X
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    • Posted

      Nataliefranc and Jwardy.  Yes, that is what I meant.  I'm sorry if it seems like I meant that your acute pancreatitis wasn't life threatening and horrible, I know it was!  I was trying to stress to arron92036 to never drink alcohol again because once he has an acute attack, that it can lead to CP.  So, he has a chance to heal his pancreas. 
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    • Posted

      It's ok i was just trying to state that ap is completely different to cp,as in it tends to happen all at once rather than with cp it keeps recurring and flares up at different times. People with severe acute pancreatitas are usually left with a high percentage or a totally dead pancreas and life threatening complications.the pancreas will never recover .
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