Extreme Case?
Posted , 8 users are following.
Hello
I am 43 years old and was diagnosed with a 'spectacularly underactive' thyroid at the end of July 2007. My TSH level was over 100 (apparently they stop counting after this) and my T4 was only 1.2. It got so bad that I almost fell into a coma; I could sleep virtually all day and all night; my hair was falling out; my joints hurt; and my weight had increased by about 7 stones over the years and though I have always had a good diet, I blamed myself for being a lazy so-and-so. In addition, I was breathless, etc, etc. Despite all this I was holding down a very pressurised job as a teacher in an inner-city school. I think adrenalin must have kept me going for so long.
I started on 150mcg of Levothyroxine and am now on 250mcg. I continue to feel unwell (though many symptoms have eased). The consultant told me that it would take six months for me to feel better after my levels had [i:872c9babc5][b:872c9babc5]stabilised[/b:872c9babc5][/i:872c9babc5]. My doctor has seen the levels come to within the 'normal range' but insists that he does not think it can be my thyroid but is more likely to be chronic fatigue. He is not prepared to do another blood test until about June.
I just wonder if anyone else has reached such a critical point before being diagnosed and if they can share any similar experiences. I have been taking Seroxat for about ten years also and am now convinced that the depression I suffered was probably related to my thyroid illness. I am a very strong character and I think many doctors try to make out that continuing symptoms are down to 'clinical morbidity'. I keep telling him that I am sick of feeling unwell and do not want to contemplate having Chronic Fatigue Syndrome. :?
0 likes, 13 replies
cerephin
Posted
Im in agreement with you about the doctors I have been on thyroxine for 6 years now and am on 225 mg I still don't feel like myself though, my docter just says well your test results are fine its just you!!! All his other hypothyroid paitents are very happy with his treatment according to him so its just me!!!! Admittally I do have Autoimmune diesease ( B12 deficiency, vitilago,polyartharia etc) but I still feel that they only look at test results not at how you actually feel. I have no energy my memory has long gone i survive on Lists, Its a family joke that I can't hold a thing in my head for more than a few minutes, my hair is thining I actually got a sunburnt scalp, even the doctor had to agree my hair was a tad thin then!! Im just fed up of it all. But its hard to make to much fuss as they can strike you off and thats just scary!!
jackfrost
Posted
Remember knowledge is power
Guest
Posted
alicia
Posted
Guest
Posted
I really do sympathesise with you. I am visiting the hospital every six weeks because of my fluctuating thyroxine levels. I feel absolutely awful. I'm suffering from insomnia, depression, mind buzzing but unable to do much at all. I have lost interest in living and am just existing - I have three children to look after and my marriage isn't great at all.
We need help - not fobbing off.
Take care and all the best.
ms
Guest
Posted
kelly
Guest
Posted
And life has been a roller coaster since becouse when all starts going wrong and you tell the doc I feel this that and the other, We get \"your stressed \" and it goes on.... Until the dose gets a little higher and you feel back to normal ( whatever that is?) where does it all end and how high can the dosage go....... Im worried. I am currently on 200mg of thyroxine and in the process of needing more My symptoms are swollen neck (goiter) lethargy,miserable ,very tired and aching joints,and im sure my partner agrees a pain in the but to live with. I totally sympathise with anyone who has this dreadful desease. Nobody seems to understand.
Carol xx
lynne37
Posted
take care
lynne
Guest
Posted
Guest
Posted
We all share very similar symptoms and all have so much in common but, what I can't understand is why aren't the medical profession waking up to this (except a few). We all want to feel well so we can get on with life and enjoy it and be happy. None of us don't want to be like this. I am watching my children grow before me and I've not been there for them in the last two years (when I went really downhill). Even now, my children sometimes talk to me and I really want to respond but my mood plays havoc.
One day it'll all come out like it always does, and then perhaps thyroid patients will be given the treatment and support that they deserve.
Take care all
ms
Guest
Posted
shaaron
Posted
Pamelalync1
Posted
Some people do better with a combination of T4/T3, some T3 only and some on natural Armour Thyroid (porcine) which is a combination of T4 and T3 and sometimes a combination of all three.
We are all different and should be treated as such.
It would be worth reading up on T3 and discussing with your doctor.