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Do TSH home monitors exist?

Posted , 6 users are following.

sarah95570
sarah95570

I've been a Ginny pig on levothyroxin and it's just not helping! I was diagnosed with Hashimoto's disease last year and I've never felt right since I've started the synthetic hormone. They started me on 100mcg and then, jumped me up to 150! I was being overdosed and the dr would not listen to me! My symptoms were text book! Then, I was told to alternate 150 and 137. That didn't help at all! Then, I was told to just take 137, still too high! Now, I'm currently on 125 and I still feel terrible! Is anyone else experiencing this?!?

0 likes, 18 replies

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  • doreen75627
    doreen75627 sarah95570

    Posted

    Ask your doctor for a referal to a specialist. I have talked to a person who has been on levothyroxine for several years and she told me it took ages before you begin to feel better. I take my levothyroxine at night last thing before bed now and I feel a lot better doing it that way. Your blood tests should be taken regularly .I felt awful for ages, disorientated,foggy and lifeless but I am a lot better now. I started on 50mcg then 100mcgs . Good Luck.
    • sarah95570
      sarah95570 doreen75627

      Posted

      I was being seen by an endocrinologist. Unfortunately, I lost my insurance. I've been struggling with this for almost two years! I'm only 29 years old and I feel like hell! I just want to be normal again. I've apparently had this disease for over a decade. I've spent my whole 20's feeling horrible. Even lost a pregnancy from it. It's making me crazy!
    • doreen75627
      doreen75627 sarah95570

      Posted

      I have never been seen by an endocrinologist you would think they would be the very best to advise you,are you English as it would be free on referal to see one. I know what you mean about feeling normal again, I felt exactly the same, I can only say since taking the drug at night I do feel more like my old self,why dont you give it a try. I had been going through a bad time looking after my dad and then my husband was diagnosed with kidney failure and wether it was that, that brought it to light as I was very low when I went to the doctors, panics, feeling faint etc heart racing etc. Everyday it seems to get better for me. There are thousands on Levothyroxine and have been for years so I suppose it in the end must improve our quality of life. I have to think that way as I do not know of an alternative solution or a natural one.
    • sarah95570
      sarah95570 doreen75627

      Posted

      Unfortunately, I'm an American. Healthcare is complicated to say the least. There are natural alternatives. I think I'm going to try that.  I don't know if you're like me, meaning your thyroid is completely dead, but I've been battling this long enough. I nearly died last year. I would fall asleep standing and driving. My right arm became paralyzed. I had just had a stillborn. I was welcoming death. Then, I figured out what was wrong with me. I didn't have insurance,

      But I was fortunate enough to know a doctor. We did labs and confirmed what I already knew. I also discovered that, that was how my daughter had become mentally challenged. I'm so tired. sad

    • sarah95570
      sarah95570 doreen75627

      Posted

      They should have a thyroid monitor like they do or diabetes. It's all part of the endocrine system. Just makes since and then, we could get they right amount of hormone by injection when we need it. Have you experienced thyroid hormone overdose? It's pure hell!
  • glynisrose
    glynisrose sarah95570

    Posted

    Blood tests mean very little, you need to get your doctor to acknowledge symptoms not numbers!
  • glynisrose
    glynisrose sarah95570

    Posted

    TSH means little or nothing as it does not tell you what is working at cell level.  I agree you should ask for a referral to an endocrinologist but I'm afraid there are very few that don't toe the TSH line!!
    • sarah95570
      sarah95570 glynisrose

      Posted

      I've already seen one. Still in a bad way...I'm just trying to get some other suggestions. TSH is important. Mine was 89.4 before Levothyroxine. That's pretty dangerous. 
  • RKD
    RKD sarah95570

    Posted

    Hi Sarah, sorry to hear you are suffering.  It does sound like you are being over medicated but could you post the results of you bloods? that will give us a good indication.  Usually doses are increments of 25 mcg i.e. 50 75 100 etc...  just wondering how on earth you split it to 137 ??  Could you take less youself and give GP feedback?  you bloods should be taken frequent whilst monitoring medication.

    Regards.

    • sarah95570
      sarah95570 RKD

      Posted

      Once you have to take over 100mcg, it's in increments of 112, 125,137,150,175,200 and 300. I have no idea why. I know that there are people trying the pig thyroid hormone. I'm considering it. Levothyroxine has been a nightmare!
    • RKD
      RKD sarah95570

      Posted

      Hi again,  are you in England ? because NDT isn't really available here.  The incrments to the medication is news to me.  ??

       

    • sarah95570
      sarah95570 RKD

      Posted

      I have an aunt that takes it.  I'm going to find out what  the benefits are and I will share. smile
    • RKD
      RKD sarah95570

      Posted

      Right, that explains the difference in increments of thyroxine. NDT isn't readily available here in England.

       

  • RKD
    RKD sarah95570

    Posted

    Right, we don't readily have NDT here in England. That explains the difference in medication increments.

     

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