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morton neuroma ... hôspital told me won't treat as they dont cause pain referring back to gp ,

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lorraine_26642
lorraine_26642

asince september i have had neuroma  , can not walk on foot feel like i rattle with amount of pain killer im on , can not put foot down at all , to be told by hospital doctor they dont case pain and they wont treat the neuroma and i need to go back to gp , to get refereed to pain clinic when i asked him what he thought was causeing my pain he said probably a nerve !!!!!!!!! at wits end im full time carer to step son and social workers have given staff five days aweek to acre as i can not manage on my own with foot and extream walking difficulties , has anyone else had treatment or pain clinics  , im so fed up even now on antidepressants as hard coping with pain been doing so since september 

0 likes, 10 replies

10 Replies

  • starrynight
    starrynight lorraine_26642

    Posted

    Lorraine, I can't bear it.  There really isn't enough knowledge on neuromas at all and the pain they can inflict.   You should be up for disability but even doctors don't understand the problem.   I think it is about 3 million people it affects in the UK my podiatrist told me yesterday and some, like us, worse than others.  I have had 4 neuromas and all removed twice.  Neuroma pain is very, very, very real.   I was told by generally older male doctors that I had to accept I wasn't perfect anymore, to go to the gym and lose weight, to try running....its flabbergasting.  Back then, it took a lot of courage to say NO, I'm in constant pain and need help.  No doctor even told me about antidepressants specially for pain or even pain killers.   I've been dealing with this for ten years.   It isn't covered by the NHS but there are two places in teh UK that offer cryosurgery which could significantly reduce your pain.  I'm on an antidressant (think called Effesor) which helps block pain signals and also on Tramadol combined with paracetemol which doesn't make me feel sick like other pain killers.   I just had another cyrosurgery yesterday on another area and already had significant relief.  All doctors are idiots and because they can't see your pain (like friends/family), they don't seem to try and understand it.  Perserve and find an understanding doctor - mine is at London Podiatry Clinici (not sure if you are in the UK) and only doctor that understands and most importantly, listens and doesn't treat me like I'm insane.   After so many dismissive doctors, there was a point where I even thought the pain was in my head (though clearly the size of the neuromas proves this isnt' the case).   If you need any help/advice, I'm hear.  It is so horrible to feel alone and in pain with no expert to turn too.   If you hopsital doctor wants to talk to me about neuromas causing pain, be happy to talk to the ignorant guy.  There are things you can do - orthotics, pain med, cryosurgery, final resport surgery - that will help, I promise.  Its a long road but you'll get there.   Thinking of you.
    • lorraine_26642
      lorraine_26642 starrynight

      Posted

      thank you for your reply and you have helped me no end and given me a list of things i will ask gp about smile im current ly on codine and ibrufen and paracetmaol , and anti dresspesant also pain killer Amitripyline . also im on anti sickness . i will be requesting to see someone else , at a different hospital also my son whom works for NHS in london is going to get me as much information and possible treatments as he can , i will post anythink he comes up with , i long to be able to wear shoes of any discription and the ware on foot ware i have managed to get on , makes then unsuitable so quickly , it is good to beable to ask people like urself on here for advice and support smile i have felt like there is no one who understands i try not go on about it at home as im sure every one fed up of hearing my pain , and living with it , im  frightend that this will go on for a long time i thought once they found problem they would treat it , i dont want to just manage pain for how ever long i want treatment to be pain  free eventually to walk , 
  • ashley9178
    ashley9178 lorraine_26642

    Posted

    Lorraine, 

    What else have you been trying besides the pain meds? Have you used orthotics. I have found that "correct toes" has worked wonders for me! I went from not being able to walk to now being able to exercise again. 

    I feel for you and know how painful and awful it is. My doctors just gave me custom insoles that never worked and said they couldn't do anything else short of surgery...thanks a lot....

    Let me know if I can help you with any info or suggestions on what has worked and not worked for me. 

    Good luck and try to feel better!

    • lorraine_26642
      lorraine_26642 ashley9178

      Posted

      hi ashley nothink just pain killers and antidresspeants when undiagnosed  , anti biotics  anti inflamitrys , gout medication  or change of diet as thought i may be pre diabetic and , xrays as they thought stress fractures . then they scanned and fount neuroma , yeah i thought now w we know now we can do somethink , nope no treatment a i asked about foot wear sad hospital doctor told me what i had a pair of 2 sizes two big ugg boots that  open all down side and good foot with 3 pairs of thick socks sad and the way wear is as i can only put very edge of my heel on ground one side of heel means even thsees now pain full as foot slips to side sad i tryed to explaine even took last foot wear to shpow how hey had worn so they could see how i walk  but no no advice at all basiclly got told go away back to your gp sad 
  • debbie82172
    debbie82172 lorraine_26642

    Posted

    hi lorraine . i no exactly what you re going through. Think you need to see another consultant, as there are treatments for this condition. I ve had mn in both feet for a number of years now. The first treament i had was alcohol injections which didnt work at all. The pain i have is chronic and really dibillitating as i work on my feet aor five hours a day. I am on the sick at the moment as i ve had surgery on both of my feet for this condition. The first in December and the second on 3rd feb. At first it seemed to work in the first foot operated on but now i m getting a lot of pain again. The second op has been better , i think even though its only been 3 weeks.I do have some pain in the second foot but i suppose its early days for both feet really. I m due to see my consultant on 16 march so hopefully things will have improved by then. I m glad i had the surgery as the second foot feels differnt to how it did before the op. I ve read a few pwoples experiences of surgery and some say you can have pain and discomfort for up to a year so i m hoping thats what the pain i still have is. I havent had hardly any swelling and the wounds have healed really well. I was only in hospital for a short time . I went in at 7am and was home by 2pm the same day with no side effects whatsoever. I had stiches and dressings removed after two weeks but am still walking with crutches as these help not to put to much weight on my recently operated foot. I hope you get the treatment you need. Dont give up and see a different consultant. I hope this has been some help and hopefully you ll get the tretment you need . Good luck . Oh my consultant told me the tramadol i d been prescribed isnt any good for mn as its nerve pain and you to take anti inflammertaries such as ibuprofen, and he also told me to get some arch supports for my shoes and insoles for this condition. You can get them from amazon aswell well as chemists. they have helped a little but i d try anything for the pain.
    • lorraine_26642
      lorraine_26642 debbie82172

      Posted

      thank you  yes debbie and yes i will defantly ask gp about how i can improve foot wear , and will ask for seconand opion ion  hope things carry on getting better for you and i will ask about surgery too as i think to be honest that this may be the way to go for quickest recovery as i really dont want to spend months and months trying alsorts if surgery would help and be quicjer  recovery time  , 
    • debbie82172
      debbie82172 lorraine_26642

      Posted

      You ll do anything to take the pain away. If my surgeries dont work i m going to try accupuncture. I cant bear thinking about the future because my feet have become worse in the last year so fingers crossed they improve now. Good luck to you and dont be fobbed off . Get the treatment you need . X
  • lorraine_26642
    lorraine_26642

    Posted

    gp was shocked at how i was treated at local hospital and is now refereing me to coventry hospital to see another specialist .. so now waiting to here from them with an appointment ... so fingers crossed 
    • debbie82172
      debbie82172 lorraine_26642

      Posted

      I go to meriden hospita coventryl as a nhs patient

      Had the choice walsgrave ehichbis next door and a few others but i no yhe meriden has a good reputation. I saw my first consultant a mr dukaram who couldnt care less now i see mr salam who is very good. Had follow up appointment yesterday . He assures me the pain i m gettingvis normal but because my left foot is really painful is goingvto inject it in 8 weeks time if no better. I still optimistic whether i ll be free of pain. I ve just boight some more insoles and alignment socks off amazon. The socks are really helping. If they dont improve over the next few months i m definately going to try accupuncture. Wish you luck with your hospital appointment

    • debbie82172
      debbie82172

      Posted

      Sorry the word next to walsgrave should read hospital.
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