Cardiologist who blows you off

Posted , 10 users are following.

About a month ago I had a sever attack of SVT. Wasn’t diagnosed yet. Went to the ER, thinking I was having a heart attack, luckily I did not have one after four hours, in the ER and being monitor. 

The ER, doctor told me, to follow up with a cardiologist. I called the guy I saw 6 years, ago when I had an episode, and still not diagnosed with SVT. he said I was fine and sent me home.

This time, when I called and got an appointment for three weeks later, initially it was a six month wait. I went in, we talked told him what’s been going on, this is my third visit  doctor told me, I had a classic case of SVT. Would refer me, to a cardiologist who performs ablation surgery after testing to confirm his diagnosis. Doctor put me in a heart monitor for two days, and of course nothing happened. Schedule an echocardiogram and stress test. Had my eco a few days ago, and heart was perfect, and the doctor said see ya, later bye. I asked about my schedule stress test at the end of the month and am I still doing this. Said he will get back to me. Four days later no call back. I did not cancel the appointment, so I will keep it.. 

Anyone else get blown off by their doctor before? I still have episodes nothing as bad as the first one, but heart still beats high and last for 30 minutes or longer and all the tricks to stop it, doesn’t work. Should I seek a second opinion or just go in with life being worried about another attack, and just grin and bear it like the doctor said I should? 

Apparently, the two other times I’ve seen a cardiologist about this problem I wasn’t diagnosed with it. First time heart medication went away stop taking them this was 15 years ago. Second visit six years ago, doc blew me off said I was fine. Now these episodes happen all the time. 

Just confussed. 

0 likes, 14 replies

14 Replies

  • Posted

    I've been "blown off" for 30 years.  Yes, you read that right.  THIRTY. YEARS!  Then, on 2/26/18, ended up having a STROKE because no one would help me.  I was in the ICU for two days and on the telemetry floor for another two days.  Now, I've been firmly diagnosed with Atrial Tachycardia along with Atrial Fibrillation.  I've started on Verapmil and Lipitor.  I've lost my job because of all the time I've missed, my husband's company dropped me from the health insurance without notifying me (we're divorced and we knew it was coming, but still, aren't they supposed to legally notify you??).  All because NO ONE believed me or took me seriously for all of these years.  I KNEW something was wrong.  Hell, I wore a halter monitor for a few days (planned to be for 10 days) but after only 3 they called me and said, "Umm, yeah, we've already caught THOUSANDS of events, you can bring it back now."  And still. . . .STILL no treatment!  I'm a woman so, of course, I'm "depressed or having a panic attack or looking for attention".  There's no way that a WOMAN is really sick??!?  Funny, if that were the case, wouln't women live forever? 

    I'm sorry that this is happening to you, but it seems as though it's par for the course, as far as I can see.  Good luck!  I hope that someone takes you seriously soon!!  XOXOXO

  • Posted

    Hi,  SVT episodes are notoriously difficult to catch on monitors when they are random and unpredictable.  I had the same problem for years.  My attacks were horrible they lasted for hours and my heart rate went over 200 bpm and left me exhausted.  I was never able to convert them either so just rested and waited them out.  The only time I was able to record an attack was when I was given a monitor to keep at home and only use when an attack occurred.  Following that SVT was diagnosed and I was given an ablation.

    Maybe ask your cardiologist if you can be given one of these monitors.  There is also a gadget you can buy to attach to a smart phone which will record your heart rate and send it direct to your doctor.  I can't remember what it's called though.  Good luck.

  • Posted

    Yes I had been to several heart doctors and every test you could imagine when I was young I started having some problems I thought in my younger teens that it was normal because I was active but later when I was about 20 it hit me and I thought I was having a heart attact and of course when the doctor seen me it had stopped he did ekg and said your to young to have a heart attack. so the regular doctor put me on valium thinking it was stress and panic disorder. went on for ever over the years through out 3 kids and years I would go through attacks and everyone was like she will be ok its just her panic attacks and of course my depression well sometimes worse than others I would end up in er and be sent to heart doctors and be admitted into hospital, oh its what we call angina or its an infection around your heart. there has been no test available I haven't been through I am now 48 yrs old last April it hit me again but this time it woke me up at 430 in the morning out of my sleep. it was so hard I absolutely knew this was a major heart attack I couldn't breath, cold sweat, my heart pounding through my chest my husband rushed me to er my heart was stuck at 257 beat a minute they had to stop my heart and reset it. I was in the hospital for 3 days. the er doc sent me to an electrocardiologist and after al the test found out that I was born with svt do to extra nodes in my heart that the other doctors never found. iwas set to finally goin to do the heart abalation for November 22,2017 but before I could I woke up again with svt  er here i come at 244 beats a minute again they stopped my heart restarted it again. Finally time for my heart ablation November 22,2017. They went through my arteries in my neck and both sides of my groin and they found it as soon as they located it and touched it my heart flew up into the higher 200's so the ablated it. its now 3/8/2018 and I still have some after effects like pinging heart pains and some skips or off beat but from what I understand its normal because my heart did it for so long it tring to go back into the old rythem but the place where the node was has been burned but at least  its not near what I was going through. now I can take like a 5 mg of flexril to help it to calm myself and it down which is few and far between. skip the bull s**t doctors and find you a electrocardiologist.

     

  • Posted

    oh also have the doctor test you for sleep apnea I found out I had it very severely and that may have been what set it off while I was asleep. they found out while sleeping I only breath maybe 30% on own the rest of the time I stop breathing I have to sleep with a machine every night
    • Posted

      HI Elisa, I too was diagnosed with sleep apnea and I am sure it made my svt worse, I went for ablation 2 weeks ago. How did you get used to your sleep machine? I have had a redmed cpap the one that adjusts your pressure automatically for a month and can't sleep with it. I tried two different nasal masks. It caused me to concentrate on my breathing and then I can't fall asleep. What mask do you use and how did you get used to it? I am also having a oral appliance made to see how that works also. I still suffer from the apnea effects everyday and if I have a drink or two I am really messed up the next day as the apnea gets worse.

  • Posted

    felt to me as i am describing my situation. i had SVT in 2016 but not yet diagnosed and i have undergo.. multiple times ECG, stress echo, CT angiogram , Brain CT and holter last week. Nothing showed up.

    As per doctor i shall not think about this and move on, ignore the feeling and when ever i start to feel anxious, just relax and take deep breaths..... doc suggested Reveal device, loop recorder to idenfity.

    google about this Loop recorder to know more about it.

  • Posted

    Thank you all for the replies. I finally got the diagnosis. Howerver, because he can not duplicate with the test he doesn’t want to do anything at all. I am making him keep the stress test appointment. Just do not understand, if he believes this is my problem why won’t he refer me, to the surgeon who performs the ablation? Instead tells me, see ya later bye call me, if you have a problem.. I have a problem this is why I’m here in the first place. 

    I guess I can live with this as my episodes are not daily, and like you all know you just don’t know when they will hit.. at least I do not not faint when this happens. I’m just not sure if, I should just go and fine a surgeon who performs the ablation, and ask for a second opinion..

  • Posted

    It can be very hard to capture SVT, so tell him you want a 30 day event monitor, if he refuses, go get an appointment with an electrophysiologist cardiologist  that just deals with the electrical system of the heart. 
  • Posted

    You need to go to the er when it’s happening. They can tell from the ekg what type of svt and prescribe meds. I did 3 months ago and was out on metropolol. I’ve had 2 since usually when I am suffering from anxiety. Cardiologists don’t think svt is a big deal from what I’ve seen. It scared me to death 
    • Posted

      It's been four-plus months since I've seen my cardiologists after all my test he told me to see how it goes for a year, and to monitor and see how many episodes I have. In four months I've had around 20 plus episodes. I have also know what triggers them so to speak. Heat, adrenaline, lack of nutrients, fatigue. 

      Now that summer is here and the weather is hot, and my job I work as a Sous Chef and our kitchen can get upward to 100 plus degrees during peak times, and we can't have direct air conditioning on us, I have around two to three episodes a night. I just ignore them and keep going as I can not stop what I'm doing. I'm lucky I do not get lightheaded or faint. I can not go to the ER, for every episode as or ER charges over 30k to walk in and be seen. 

      I have also noticed my heart rate will drop after these episodes down to 47 beats as well. Basically, my heart beats are all over the place. 

      My doctor wants to wait a year before he will give me a referral to see a specialist. I'm on zero medication as well. He felt I should just deal with it. My question should I call and demand a referral to see a specialist or just continue to grin and bear it? 

       

    • Posted

      Demand. Demand. Demand. This is just not right. There are many things that can be done. Insist on it. If you are in the US get another doctor quickly.  It’s just not right 
    • Posted

      Get another doctor quick! It’s ridiculous to have to wait a year!!!!
  • Posted

    Had my first episode 2 weeks ago. Went to ER they diagnosed me.  Had another one yesterday went to ER and they slowed my pulse but didn’t offer any other info..  Now I have anxiety anticipating the next one..  What an awful feeling.  Sorry I r going through this

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