Panicked about Clitoris
Posted , 6 users are following.
hi
i get recurrent pain on my clitoris, it looks like the tip is missing skin. Does anyone have this issue & if so what helps? I takes weeks to heal and comes back. My LS was diagnosed 3 years ago, its progressed hugely despite cob, ive lost my inner labia & although my clitorial hood is intact, it feels like the inner labia fusing under my clit is putting pressure & my clit is no longer protected..
I've felt so stressed about it since sering the dr 3 weeks ago, that ive had a massive flare up and can see the last of my innner labia by the side of my clit disappearing in those weeks. I dont know how yo reduce the constant panic i feel about it and about life (38, single parent have been sincce pregnancy). I feel so alone & don't know who to turn to. I feel like i won't ever be in a position to meet someone, and the
1 like, 5 replies
Cmcm1987 mic22234
Posted
Hi Mic
I am so sorry you are suffering from this this horrible condition at such a young age. I'm hoping this info may help you. i used clobesterol too but now my clitoris is completely covered with scar tissue and i am fusing in certain areas. I am 68 and married and am still capable of orgasm( the clitoris is there, just under scar tissue). If you can afford it look into the Mona Lisa procedure. i am being treated by a urologist and will get my second treatment this month. the treatments are given 4-6 weeks apart. i am amazed at the improvement with pain and itching from just one treatment and am hopeful that these treatments will if not cure then stop progression and improve my LS. the doctor typically gives 4 treatments but some people may need more or less. He thinks i may need 6 so we'll see. After the series of treatments are done then you go back once a year for a touch up if needed. There is some pain for about 3 days following the treatment but nothing worse than i had during a flare up. I just use a squeeze bottle filled with water to pour over the area when i urinate. I think there may be some clinical trials you may be able to get in which would be free. i hope this helps. i started taking baths with borax which seems to calm the area down. i am unable to use the tub for a week after the treatments though and just shower. The treatment actually burns off the white patches and generates new LS free skin.
I feel for you and hope you get some relief. Hood luck and I'll post how my procedures go.
kathy00684 Cmcm1987
Posted
Thanks Cmcm,
Mine is covered over with scar tissue as well. There are no specialists in my area so I am at least given the clob...but nothing else...no advise or length of time to use it. It isn't working too well...or maybe flare ups. I was worried how much would further scar tissue would keep fusing down there. I am going to look up the Mono Lisa and check it out.
Very appreciative of your information!!!
beverly52803 kathy00684
Posted
Mic & Kathy, what countries are you in? There are also platelet rich plasma injections (PRP), but it seems only available in certain countries or only in parts of those countries. Commercially it is called the O-shot and typically given in spas. However, if you have LS there is a different protocol.
I'm not sure if ML or PRP would be more appropriate for your particular circumstances but you might want to research them.
If you look back at old posts you will probably find info on both in terms of people's experiences with having the procedures done.
I was told by my last gyn that she would not recommend the ML laser on thinning post menopausal skin. She did not perform it herself but was following the results of a dr who did. I never got the chance to discuss PRP as she has left the practice. Re PRP I have been on the hunt for an MD who administers them for the last 5 months with no luck. (I am in the northeast US).
Please let us know where your research takes you and how you make out. I have been using hormone cream (post menopausal) and steroids for a year and a half. Have now begun using Tacrolimus, but it's too soon to tell if it will be beneficial.
kathy00684 beverly52803
Posted
Hi Beverly,
I live in the United States. I have been researching the Mona Lisa on my computer since you mentioned it.
The closest Dr is 7 hours away (that I can find) that treats LS). I am a little bit disheartened. Not even in my state.
I guess I am left on my own to deal with it. Really hoping someday that LS gets more attention from the medical field. Hard during flare ups and watching it get worse...which it is doing right now. More scarring occurred just this week during this flare up...it's going crazy right now...so so painful.
Nancy_K_B mic22234
Posted
Hi MIC, too have been a single parent ever since having my child (who is now 34 with her own son). I didn't discover this LS until two years ago - so well past menopause. How old is your child now? smiles - the most precious thingwe can do in life is raise a new human soul with all the love we can give.
Have you been able to start on a routine of vitamins and supplements for autoimmune diseases? high Vitamin D3 and its cofactors? I never took the steroids, but continue a consistent routine of supplements which have made things comfortable and stabilized down there.
The last time we chatted, I'm not sure I reposted my discoveries about organic aloe vera gel with tumeric extract drops added. They both have proven healing properties and the aloe is very soothing as well. It has been the only thing that calmed things for me last year when I was in that sensitive pain.
YOu can check out both of my articles on these by clicking on my name and then on the discussions tab on the right side and scroll down.
My thought is that we can not expect surgeons and cremes to "fix" us if we don't do our own due diligence to create an internal health and wellness conditions within - supplements are needed to balance our biochemistry. No sugar (alcohol is a sugar), no to low dairy. some also notice that they are sensitive to wheat as well. I haven't found that to be the case for me. Blessings.