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Compensated Cirrhosis - does anyone experience symptoms?

Posted , 5 users are following.

tomironoverload
tomironoverload

Hi all,

I was diagnosed 10 years ago with Cirrhosis after a dx for a very agressive form Hemochromatosis (iron overload), I've read a number of websites which make claims that Compensated Cirrhosis doesn't have symptoms, is this true, if anyone does can they please specify what symptoms or signs they have encountered?

As a result of Hemochromatosis, I have a number of secondary conditions including GH deficiency, Hypopituartism, Type 1 Diabetes and other glandular damage however whilst I'm treated for all the above, I still feel significantly symptomatic and need to know if this is as a result of the Liver Damage or if there may be another secondary condition.

Look forward to your feedback and thanks in advance,

Tom

0 likes, 5 replies

5 Replies

  • sheryl37154
    sheryl37154 tomironoverload

    Posted

    So sorry to hear that Tom.  Hopefully, this does not mean you are moving from compensated to decompensated.
    • tomironoverload
      tomironoverload sheryl37154

      Posted

      Hi Sheryl,

      No, my symptoms have been static for the last 10 years and my Gastro believe my Liver is workinvg excellently therefore I can't understand why I feel the way I do.

      Various respected institutions websites state frequently that there shouldn't be symptoms if Compensated where a few say differently.

      I clearly have Portal Hypertension as my Spleen was measured at 24 (cm in circumfrence I think), average is 11.

      I'm just keen to know from individuals who have compensated Cirrhosis or people in the know whether I should be experiencing symptoms, I have all my Liver Related blood results from 2007 to hand which I can post.

  • sheryl37154
    sheryl37154 tomironoverload

    Posted

    I hope some people do respond to you that can be helpful.  What about a liver association?  Do they have any helpful knowledge?

     

  • Markonious
    Markonious tomironoverload

    Posted

    I have decompensated, ESLD and managed to get there without knowing I had liver disease ... until I blewup like a balloon with ascites. Got introduced to the world of paracentesis and diuretics, betablockers, etc. Now I feel all of the symptoms but my bloodwork would amaze you and most doctors, very good. Advanced liver disease can be very strange at times but knowing what I do now, there were hints along the way during the compensated phase which I chose to ignore.
    • amber03410
      amber03410 Markonious

      Posted

      Hello, can you please share what your symptoms with compensated cirrhosis were that you ignored? I am awaiting to find out if I have cirrhosis currently (found when discovering a kidney issue), but I don't have any of the classical symptoms. They did an ultrasound that said "Hepatic fibrosis/cirrhosis" but are doing a CT scan. All of my blood work is fine, but I know you can have liver disease with normal blood work.

      Thanks!

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