Posted , 4 users are following.
Hello there, my 67 year old sister has CKD and will have to go on dialysis at Easter. Are there any alternative medicines/complementary medicines/diets that could help improve kidney function and thereby avoid or at least postpone the requirement for dialysis?
Thank you.
0 likes, 20 replies
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helen54849 virgil7
Posted
Your right PD isn't for everyone but neither is haemo, whats important not to loose sight of that if one doesn't suit you can always try the other. They sold PD to me as something you can do at home, however I may be young but I am not stupid by any means and think that the selling of PD is more to do with the fact that I wouldn't be clutting up their hospital 3 times a week! PD suits me and my family. Now you mention it I heard a lot about somerset on the news, very sad for the people. The BP meds make me a tad blonde at times
. Regarding the move perhaps the pair of them are just tired of city life and need a bit of peice and quiet? Just something to point out with any home dialysis there is lots of equiptment and stuff you need to find a home for, that was my issue as all my bedrooms are full of us and our children! no problem though the NHS in wales have a solution you have renal failure here have a shed every cloud and all that ha ha. If she is going to do the treatment at home and is using a whole room (she will need this) she can apply to the council to have a reduction in council tax as a room is used for treatment, she can also apply to the water company for a reduction and electric company. If her doctors signs the form I beleive in England if you have a fistula you can get prescrition releif so its worth asking about this and if I were her I would get her application in for personal independance payment (PIP) this is not means tested and anyone can apply it just takes ages have a look at direct.gov for the numbers etc hope this all helps x
virgil7 helen54849
Posted
I spoke to Sandra this morning and mentioned PD, she said she does know all about what that entails but, she had a hysterectomy in 1988 and there are doubts about whether the catheter would be suitable for her as there may be some damage done to her stomach wall.
She was eating a bacon sandwich when I phoned
and getting ready to go to the pub for Sunday lunch, surely that isn't a good idea for someone with her condition!
"The BP meds make me a tad blonde at times"
Same with Sandra actually, she's always been a difficult person to deal with at times (Gemini!) but she's even worse now
Re: the move, she had absolutely no intention of ever moving out of London but, the value of her tiny flat kept going up, and up, and up, so she took the money in the end. She will miss London though because she's one of these people who are always out & about - every-single-day. She's always been a 'gadabout' though, when she was younger she worked as an au pair in Italy and South Africa, she has loads of friends all over the place who she often meets up with.
One thing I will say is that she's not at all good when it comes to following strict diets, she said to me once "ya gotta live" and I can well understand that but, if it was me, I would be able to follow any strict regime to-the-letter, but then I'm a Virgo
Re: the equiptment required for home dialysis, yes, her bedroom is on the small side, and I hear the unit have got to go along to check that out.
I like the shed idea
Thanks for the heads up on the council tax and utility Co's, I'll tell her about that, when she is less-likely to 'jump down my throat for the slightest reason whatsoever
"have a look at direct.gov for the numbers etc" Thanks for that too Helen, you have been very helpful.
Ray.
helen54849 virgil7
Posted
Yes she is right, if you have had previous stomach surgery it can cause issues.
Which bit isn't a good idea in our condition the bacon butty or the pub
I have to confess I do induldge in both these activities.
I have to follow a low potassium diet (its not so strict now I have started dialysis) I had to give up crips and chocolate, the crisps bit was ok as I could have doritos and the like. I used to eat chocolate like malteesers and milkyway as in my mind there was chocolate only on the outside and if I was ever challenged I would simply ask "Are you going to take it off me"? I wouldn;t take food off me needless to say I kept and ate the chocolate.
I am a virgo too but on the border with leo, I'm not very good at being told what to do.
I think they may come and check haemo is a bit diiferent they just all turned up to set up the machine for mine. I know I have read people have lino not carpet as sometimes no matter how careful you are bloods spills so its easy to keep clean and also to prevent infection.
Is Sandra able to have a transplant at all? I have a live doner but you also have to be on the transplant list not nice as my landline rang at 5am the other morning and I thought it was them turns out it was the scam people telling me my computer was running slow!.
My friend has offered me her kidney (my husband offered his but we have 2 children and I think unless necessary to have both parents disapear is harsh) so hopefully that will happen soon and then I just need my op for my trapped ulna nerve from an rtc then I will be fixed I can't wait to get back to normal ish...
Keep my updated with Sandra's journey (and yours) x
virgil7 helen54849
Posted
I actually replied to your post last night, but pressed the back button or something, and that was the end of that
Re: the bacon butty/pub lunch, I just assumed either of those two could affect the kidneys in some way, but what do I know.
Sandra is also on a low potassium diet, but whether she sticks to it is another thing of course.
How about carob in place of chocolate, is that ok I wonder? .. not as nice as chocolate of course, is it.
My birthday is the 13th of September, so a full (fool) Virgo. I don't bother with the daily horoscopes but, I remember reading a book written by some American astrologer, and the way she descibed the adult Virgo male was quite startling really - how on earth could anyone know so much about me and my idiosyncrasies, quirks, plus my hidden fears and anxieties I wondered
I don't know if Sandra is able to have a transplant at some time in the future, she's very tetchy about questions like and prefers to go on with her life as if everything is fine and dandy = the ostrich effect.
Amazing to hear that your husband and friend have offered you one of their kidneys, they both must love you very much indeed.
Best regards,
Ray.