Posted , 4 users are following.
I've been suffering from SS for the last 10 years, 5 years ago it shut my lungs down and I just escaped through with my life, since then I haven't worked and most days can barely walk around my home. lack of energy and chronic fatigue plague my life.
I get extremely low in myself
Does anyone out there understand???
0 likes, 2 replies
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margaret22116 magicmaxina14
Posted
Yes. Don't have Sjogren's but Behcet's which is v similar. Almost killed me as a child. Then went into spontaneous remission around 7. Returned later. In remission again now after long treatment. Can be either mild or very disabling. Feel for you. X
christine_73623 magicmaxina14
Posted
i have suffered from SS for 25 years diagnoised at 31 but think I had it since I was 18I have been on life support for 11 days as I had pneumonia. and now that is a weakness and have reacurring bouts of it what has happened to your lungs what do you mean shut down .