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Complete Heart Block with Heart Murmur

Posted , 4 users are following.

Jambermush
Jambermush

Hi there,

My son (aged nearly 4) has a complete heart block and is due to be paced within the next few weeks.

I'm slightly concerned about the consultant though for a couple of reasons. 1: He has been diagnosed as having a heart murmur by other doctors over the last few months, whereas his consultant stated in his latest examination that there was no murmur. Can murmurs come and go that quickly? I know they can come and go within a persons lifetime, but within such a short space of time?

Also, the cause of my sons heart block is unknown. I had a tick bite that was removed very carelessly just before getting pregnant with my son, and have never been tested for Lyme Disease. I know this can pass through the placenta, and can cause heart block. Having mentioned this to my consultant, I believe I have been fobbed off with the excuse that antibiotics wouldn't do any good at this stage, whereas all over the internet there are cases of antibiotics reversing the effects even after a pacemaker has been fitted!

Any advice is welcomed!

Thanks,

Emma

0 likes, 4 replies

4 Replies

  • nykphenom221
    nykphenom221 Jambermush

    Posted

    Very sorry to hear about your son. In my honest opinion, it looks like you should seek out a experienced electrophysiologist and get a second opinion. As far as murmurs coming and going quickly, it is definitely possible. My question is, was your son diagnosed with this at birth, or was it acknowledged by a doctor when he was born? If your sons heart was normal at birth, that would seem very rare for him to acquire a complete heart block by 4. I personally was misdiagnosed at birth with a heart murmur and when i reached about age 5 my parents were told by a different cardiologist that i had a innocent heart murmur that would vanish with time. Test you and your son for lyme disease if you can, although even those tests for lyme always dont come up 100% accurate. I strongly suggest consulting a experienced electro cardio doc, that would certainly be a big help. Good luck and i hope your sons murmur will vanish like mine did.
    • Jambermush
      Jambermush nykphenom221

      Posted

      Thanks for your reply.

      His heart block was diagnosed just before his second birthday by accident as he had gone to hospital with a ENT virus, they discovered he had bradycardia and it went from there. 

      He was born 6 weeks early, so weas tested thoroughly, and nothing was found then.

      I am too of the opinion it is very unlikely for him to have developed an aquired heart block this early on.

      Will get a second opiion.

      Thanks

  • leila68
    leila68 Jambermush

    Posted

    It's your child ask for a second opinion . Speak to your doctor .
  • emma32634
    emma32634 Jambermush

    Posted

    Hi Emma,

    I would really get a second opinion I agree with what cristianC908 has said 

    I wish you the best of luck to you and your son 

     

    Emma

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