1. Community
  2. Brain and nerves
  3. Chronic Fatigue Syndrome

Completely Confused

Posted , 9 users are following.

lisa16001
lisa16001

Hello, this is my first post. I have been feeling the extremes of being tired for the past 7-8 months. At first my b12 was slightly low so I have been getting b12 injections every 12 weeks. Then I was diagnosed with underactive thyroid and have slowly been uping the dose since before December. I'm now on 100mg and have felt no improvment even though my levels suggest normality. I take an antidepressant and my GP has upped that 50mg even though I am feeling fine. It wasn't until today he had mentioned CFS. To put you in the picture, I fall asleep all the time, during meals, during nights out. If i do any exercise I am exhausted for the next three days or so and can't move. I spend my life yawning and can become very confused and dazed and believe I have done things when I haven't which can be troubling when you work in accounts. I now generally struggle with every day life, I am late for work on a regular basis, it takes me over 2 hours to get up in the morning for work and at the weekend I just sleep. I am barely in my 20's and can't maintain a normal social life. In general are these symptons? What is CFS? 

Thanks

Lisa 

3 likes, 20 replies

20 Replies

Prev
  • wknight
    wknight lisa16001

    Posted

    Glad you have a referral but don't think that because you are going private it will solve your problem. I too went private and the consultant ws excellent and gave me all the time required to not only come to a diagnosis but also to answer my questions.

    He referred me to a CFS specialist private nurse who was expensive and to be honest didn't tell me anything I didn't already know. I am now well on the road to recovery but I did it all myself.

    Hope it all works out well for you

  • lisa16001
    lisa16001

    Posted

    Could anybody shed any light on something for me?

    Sometimes I'm tired but not actually sleepy. Like I'll yawn and feel exhausted but I don't need to sleep I just need to lye down? Is this normal?

    Lisa

    • jackie00198
      jackie00198 lisa16001

      Posted

      Yes, very normal for us. All part of the wonderful world of ME/CFS. Just lie down when you need to.
    • lisa16001
      lisa16001 jackie00198

      Posted

      Thank you, just couldn't understand why I couldn't sleep but was yawning and tired. I actually left work early and gave in today I was that exhausted. I work a 40 hour week and refuse to let it beat me but today has been too much.
    • jackie00198
      jackie00198 lisa16001

      Posted

      Lisa:

      Please be very careful. It's usually great to refuse to let anything beat you. But with ME/CFS, it can knock you flat if you don't pace yourself and pay attention. I had your attitude early on when I got this. I essentially was thumbing my nose at the illness. I said "I'm not going to let this get in the way of my life." So I went on a trip, had a terrible relapse, and have never fully recovered. This is not to scare you, but to let you know what can happen if you're not careful.

Back to top
Prev

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.