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My 13 year old daughter was recently diagnosed with CRPS in her foot following a sprained ankle in football - it took many months to get the diagnosis and we are currently undergoing weekly physio in the hydro-pool at a local hospital. The problem is I don't feel we are getting enough support, have been told very little about the condition (apart from physio telling me not to google it). It is effecting my former sports mad daughter emotionally, and she feels isolated and is struggling at school. Have seen little improvement in her condition and she has been on crutches since January. The paediatric physio just keep saying they will get it sorted and they have dealt with many cases like this before but I feel like I am being fobbed off. Just want advice really - should I go back to GP and say I am not happy or put pressure on hospital myself. Would love to hear from people who have been in similar situation - as I feel this is having effect on the whole family.
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