Conception and pregnancy

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Hi

Me and my husband are contemplating trying for a baby later this year or next year.

I just wondered, are you meant to increase thyroid meds BEFORE you start trying or once you have found out you are pregnant? And by how much?

My Gp knows nothing about thyroid and ndt so I'm doing my own research first. I currently take thyrogold ndt.

Thanks in advance

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10 Replies

  • Posted

    Hi,I would honestly advise you to find a g p who is more knowledgeable and please do not self medicate you need to be monitored for a while before you find the right dosage for you.Good Luck for the Future.
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    • Posted

      Hi

      I've been on meds for 10 years now and I'm taking ndt from America. Unfortunately most doctors in the UK (even the more experienced ones) have never heard of it so I've had to do a lot of my own research to try and feel better. Best thing I ever did was swap from levothyroxine. I do plan on seeing the endocrinologist just to back up my own research x

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    • Posted

      Hi sayhitocaz,

      I was wondering what problems you had with levothyroxine? My thyroid was removed 20 years ago as a teen do to cancerous growth. Always been on levothyroxine but recently having issues with it!

      Also I've had 5 children and for me I saw a midwife and they were always really good at testing my levels regularly and adjusted as needed! I didn't do anything before hand though.

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    • Posted

      Hi selina

      I felt constantly exhausted, massively depressed, always piling on weight, hair loss etc when on levothyroxine. Even when my results were right at the top end of the ranges. It's quite a common problem as some people require t3 hormones in addition to levothyroxine (t4).

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    • Posted

      I'm the opposite, I mean I get tired, and feel exhausted but I thought that was motherhood! I've been on levothyroxine since I had my thyroid removed and as I got older I got better at making sure I took it! Although my tsh was in normal range I'd have symptoms like racing heart, sweating, tremors sometimes more than other days! I thought that's just how I was! Just recently I was over medicated on a dosage that I was on a few years back, and that felt horrible! My dosage has gone down 2 more times and I'm at what they call normal range with my tsh at .47 and I don't like it! I feel like it makes my heart race, it's weird though bc looking at old labs from years ago my tsh has always been on the lower side of normal! I don't know if it's bc I'm getting older maybe I can't tolerate these types of side effects!! I'm finding a new endocrinologist bc the one I have doesn't care how I feel, and says that it's better to have my tsh on the lower side, and he'd rather have me nervous than have cancer come back, and he's trying to put me on propanol which is a beta blocker for my anxiety but my blood pressure is on the low end of normal, yesterday at 110/70! No thanks! My heart rate does speed up though around 100, I think bc of the levothyroxine! Thank you for your reply, after all these years I'm learning how complex dealing without a thyroid is!!

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    • Posted

      Yes it's very complex and lots of other factors affect your thyroid so it's hard to pin down what's causing what symptoms sometimes.

      Im on beta blockers now as the doctors decreased then increased my dose massively and now my heart is constantly jittery. They do help but obviously not with the tiredness! I always prefer being slightly over medicated but I know what you mean when it's too much it can make you really uncomfortable and it's hard to sleep with a thumping heart etc.

      Sounds like a plan to switch specialists. I went to see one privately as they are limited to dealing with levothyroxine on the nhs now and I wanted to find out about other treatments. I thought it was worth it and he was much more open to ruling other things out for my tiredness too.

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    • Posted

      That's brilliant news. My Gp is good and tests for t3 as well as the others. I wouldn't know what dose to be on if I didn't have all the information. I hope you get the information you need x

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