Posted , 5 users are following.
Well I just got off of the phone with my neuro, and she told me that o-bands were found in my spinal fluid. I am complelty devastated. 
I'm 23 and I don't know how to deal/cope with I'm so scared
0 likes, 10 replies
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bic24773 marie92528
Posted
Im so sorry to hear that, Your age may well help as there's new treatments but only for newly diagnosed and younger people. There's one that they kill off your immune system and reboot. Ask lots of questions about gour options. Mum had health issues from her twenties Inc back and was diagnosed Ms late but I think she had it in her twenties, sge died in October 80 and it was after breaking a hip and reacting to the operation, sge didn't cone round. You can live aong life but you must be self kind. I have ms my mum had it. My sisters and now my own daughter has been referred. You'll get through it but you need support. Sending you lots of love and please consider hypnotherapy ??
drew12 marie92528
Posted
Sorry to hear that. The initial diagnosis is big and scary but you know what? MS isn't a death sentence. You've been identified early and meds may well stop a lot of relapses and prevent damage accumulating. The most important advice I could give you is don't stop making plans. Do the things you want to do now, live life to the full and have a fabulous time. I was diagnosed nearly two years ago after a decade of stuff going on. I was as scared as you to begin with. Have been on meds for a year and a half. Latest MRI shows no new lesions. I've never let it stop me doing what I want to do, be it climbing, mountain biking, surfing, walking, travel, whatever. Keep positive and crack on
marie92528 drew12
Posted
Hi Drew thank you for your inspirational reply. I know through all of this I have to keep a positive mind. If you don't mind me asking which medication are you on? I'm going to see a MS specialist at UCSF sometime this month.
drew12 marie92528
Posted
Hi Marie. I'm on Tecfidera. It seemed like the least scary of various options I was offered, so figured give it a go and change up to more serious stuff if it didn't work. So far so good - replying from Mallorca in Spain, having just hiked through the mountains this morning. Keep positive!
marie92528 drew12
Posted
Thank you thank you, I was afraid that I wasn't going to be able to continue to do the things that I enjoy doing.
Emilucious17 marie92528
Posted
Hey Marie am so sorry you had to go all through this I was
diagnosed MS just 2 month ago I had
no idea where to start and was scared as you are right now
But what got me through is positive mind always. There are rvarie type
of MS and each is treated differently I am 20. Keep in touch with
your Nurologiest and follow up ur therapy if ur doctor recommended
at all cost avoid heat that may trigger change ur diet, don't skip meal,
Drink a lot of water, exercise, avoid stress at all cost. I was on steroids
For a week then I am on Abaugeio medication. One thing u have
to let family and friends coz u need somebody to share ur thoughts
and help u at any time. I was scared to let my friends know but once they
knew they were great supporters. This outlet is really awesome
great supportive people they gave me strength and hope. And am here to do the same
Stay strong and i will also keep u in my prayers.
marie92528 Emilucious17
Posted
jason26312 marie92528
Posted
Marie, sorry to hear that. I remember that feeling when I heard the diagnosis so I understand and sympathize with that feeling of fear. I am 47 yrs old and was diagnosed when I was 31. Do research....educate yourself on the disease and hopefully it will give you some optimism on what to expect. Your life is far from over and you can live your life exactly how you wanted to live it without the diagnosis. I live in SoCal and have never steered clear of the sun. I remained fairly active and try and eat right. I do take pills to increase energy and for my MS, but I believe in positive thinking. I was told today that at my age it is possible now that research shows that my symptoms for MS may never get worse than the are now which is minimal. Keep your head up kid. You have a great life ahead of you and that phone call doesn't change that a bit....
marie92528 jason26312
Posted
Can0814 marie92528
Posted
Hi there, I'm so sorry to hear that! Did you have a positive MRI as well? I'm waiting on LP results myself... It's really scary but honestly I've been struggling for almost a year and am desperate for any answers they can give me at this point.