Confirmed diagnosis
Posted , 14 users are following.
Hi I've just been given diagnosis of lichen sclerosus and been told to use dermovate. I feel a change in clitoral area, does the use of steroid improve skin around this area? I still have great discomfort with burning and stinging!! Looking for advice.
0 likes, 41 replies
MaryMostyn alison54950
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sorry to read about your diagnosis. Dermovate is actually not good for your skin over time it will make it more fragile. Which is why when it is prescribed normally you use it every day for two weeks then it is restricted to twice a week. It works for me but only in terms of keeping it under control it doesn't cure LC. Mary
alison54950 MaryMostyn
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MaryMostyn alison54950
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no I have never tried coconut oil. Washing the area with the Epiderm ointment is really soothing and keeping the area moisturised helps. Mary.
Scottie_Lottie alison54950
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I was diagnosed with LS 10 weeks ago. It took couple weeks for my burning which was horrendous to ease off and I also found this forum which for me was a life saver as I felt so down emotionally and physically trying to get my head around LS I tried advice from various others on this forum and used Sudocrem as a barrier and it helped so much after every toilet visit as it was barrier from my urine which agrivated the LS. I also sent away to Amazon for Emuaid which also was suggested to keep that area soft and it also helped burning. Within a day of starting using these creams there was a marked difference for the good. I am now on twice a week with clobatasol and I have been having mild burning so I am putting it on every other day for another week to see how it goes. This forum has been invaluable as it gives suggestions on others things you can do to help LS and to try to see what works as everyone I has different issues with LS. I am going to try coconut oil when my Emuaid is finished as it is quiet expensive but worth it if it stops the burning. Hope this helps. I know what you are going through and it is emotionally debilitating. I started to get relief when I used barrier cream and soothing creams along with clobatasol.
Scottie_Lottie
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Me again. Do listen to lecture from Dr Goldstien an expert gynocologist in LS I was advised to watch the video and it was so informative. I watched it today. He explains about clobatasol steroid creams and it has certainly eased my mind and vitally important use this ointment. Please listen to it.
alison54950 Scottie_Lottie
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alison54950 Scottie_Lottie
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suedm alison54950
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It is a rotten condition - scary upsetting and VERY uncomfortable, but there are many other conditions that are FAR worse and much more life threatening - so we do have the opportunity to keep an eye out for possible unwanted changes that need immediate attention- so for that we shoud be grateful- and it is only ourselves and perhaps the loved ones who actually can SEE the disfigurment!
Good luck
Sue
janette25 alison54950
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i was given Eumuvate for LS and found it kept problems at bay
i also Double Base Gel for washing vagina that and only that and i was also told only to use non bio for washing and never to wear coloured underwear or use coloured toilet paper i have followed all these instructions religiously and have never had a problenm
if you are in UK you can get the double basegel on prescription and the eumuvate cream
i hope some of this is of help to you
Janette
alison54950 janette25
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Thanks for info
anita1951 alison54950
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hanny32508 alison54950
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Next to that I keep a strict diet: no sugar, no alcohol, no gluten, limited dairy. (especially cheese triggers a flare up) Avoiding stress as much as possible.
jackie73005 alison54950
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alison54950 jackie73005
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suedm alison54950
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Best wishes Sue