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I do apologise for the longwinded explaination below, but I'm hoping that giving as much info as possible will help give you a better insight into what I've been going through, and hopefully you can give me some advice or share your thoughts and comments.
I have been having digestive issues for a couple of years now, that were initially believed to be IBS. I have central abdominal discomfort mainly around my belly button area, bloating, burping, flatulence, and stomach and bowel churning and gurgling, plus a general sense of feeling unwell, very tired and drained. It seems that diet plays an major role in the severity of my symptoms. Plain, bland, low fat and low sugar foods cause my symptoms to ease, yet rich, spicy, fatty, sweet foods seem to aggravate my condition. My symptoms can also come and go in a matter of hours, one minute feeling unwell experiencing most or all the symptoms I have mentioned, then a few hours later they will totally go away and I feel relatively fine again.
My bowel movements remain pretty constant, although I have always had a problem with producing red blood every now and again, and we're talking a lot longer than I've been having digestive problems. As a result of this I was referred for a colonoscopy with biopsies just under a year ago now. The results of the colonoscopy were good, apparently my colon, rectum and terminal ileum looked very healthy, and the biopsies revealed no sign of inflammation going on, past or present. It was noted that I do have internal hemorrhoids though, which the hospital consultant said was the probable cause of the red blood produced every now and again. My doctor also requested some faecal calprotectin tests to be done over the course of a 6 month period. All of these tests came back positive with results around the 250 to 300 mark. My doctor seems to think that there still is a chance that I could be suffering with Crohns Disease. However my consultant has said that with the pleasing colonoscopy results, the fact that I am not feeling a lot worse than I do when I'm at my worst, and that my symptoms and general health feeling can change in a matter of hours, then he very much doubts that Crohns is the cause, especially since this has been going on for over 4 years now. When I questioned the calprotectin results the consultant said that the test is very non specific and can be affected by numerous other influences, plus he said people who take PPI medication, of which I have been taking Omeprazole for a couple of years now, are more inclined to have raised calprotectin levels anyway, and the fact my calprotectin results have remained constant, seems to fit in line with the dosage of Omeprazole I take daily.
I'm now at a loss as to what to do next, the doctor has accepted the consultants diagnosis, although he does have his doubts, and the consultant is as sure as he can be that I don't have Crohns. This isn't ideal as it leaves me feeling like I'm in state of limbo and feeling generally unwell, and just waiting for symptoms to worsen due to leaving possible Crohns untreated, which may never happen as I could well not have it!!
I would be very, very grateful if any of you reading this could give me your thoughts, comments and advice on this situation, and I thank you for taking the time to read this.
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