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Conflicting views on Prostatitis symptoms

Posted , 7 users are following.

daniel76051
daniel76051

Hi all,

Brief history of story: 2 years ago was diagnosed with Epididymitis after receiving oral sex from someone. The pain went from the head of penis into extreme testicular pain. I was diagnosed with chronic prostatitis about a year ago. I have had all sexual checks at GUM clinic (clear) and all urine, bloods and semen culture clear and no sti. I have had camera inserted into urethra twice and also clear.

My symptoms are: very red tip/opening of penis, clear colored discharge, pain after urinating/ejeculation, slow flow and pelvic/stomach/back pain.

My Urologist states that there is nothing more they can do to help me as I have had all antibiotics and I should live with it.

My doctor feels symptoms such as red tip and discharging are not signs of prostatitis and should be investigated further?

I have just ordered a kit online to test for Mycoplasma and Ureaplasma as I am so anxious. I don't understand how it would be any of these things as I have taken numerous courses of antibiotics that eliminate them.

Are my symptoms found in prostatitis? Should I push the urologist to support me more? I am at a loss of where to turn or where to go to sort this mess out. I know Prostatitis can be life long and not asking for a cure....just a way of managing the pain.

Thanks in advance

Danny

0 likes, 13 replies

13 Replies

  • joe98530
    joe98530 daniel76051

    Posted

    Prostatitis can have different symptoms in different people. It definitely sounds more like an std. I can be of no help other than you may have to move doctors. They all have experienced different patients with different symptoms. Sometimes it’s just knowing when to move on. Good luck!
    • daniel76051
      daniel76051 joe98530

      Posted

      Cheers Joe,

      But what STD could it be If I have been cleared of everything through numerous test methods? I was at the sexual health clinic again last week for more tests as it is constantly nagging me and desperate for something to come back but again tests were all negative?

      Surely the urine, swabs, bloods and semen culture that I have had would have flagged an STD?

      Cheers

    • daniel76051
      daniel76051

      Posted

      I think what is more worrying is that if it was an STD, it would have been sitting in my system for 2 years. Plus my partner and I are expecting the birth of our second child within the week...what repercussions this would have on the child!?
  • as12829
    as12829 daniel76051

    Posted

    When doctors say there is no more they can do,  it is not anything you should accept.  I would do some research and find what doctor is best at this kind of thing, and go see him or her.  Maybe have to travel, but no more expensive than suffering pain week after week.  I don't mean just pick another urologist to see, but search for the best of the best.   Sometimes these places are called a center of excellence. 

    I guess you've had all the work ups and blood tests you care to even talk about, but there are likely things out there for which there are no tests,  maybe rare things that most doctors would not be aware of in the first place.  But the key is to not give up and do not accept that nothing more can be done.

    • daniel76051
      daniel76051 as12829

      Posted

      Thanks bud,

      I will do some digging and research. It's just such a nightmare. I have a new job starting next week...second baby is due to drop any minute....time is very scarce for travelling around but I guess I am going to have to prioritise. I feel this is holding me back from so much

  • john_14065
    john_14065 daniel76051

    Posted

    I had a similar situation 40 years ago with arthritis.  I went round and round to all the Chiefs of Rheumatology at the top hospitals in New York.  I tried every known drug, I was even on the FDA list to use experimental drugs.  Nothing worked.  All these doctors gave up on me. I was in desperate pain and losing mobility and function daily. 

    Then I went to see my 15th or 20th physical therapist.  He was out in the country, not at a big time city clinic.  But he understood my body and he cured me without drugs.

    I urge you to keep researching and knocking on doors.  

    • daniel76051
      daniel76051 john_14065

      Posted

      Thanks John.

      I will keep on trooping. As I mentioned I have just paid £100 for a test online for other STD related issues (Mycoplasma Genitaliem and Ureaplasm). I just can't believe I have been pushed from sexual health clinics as having 'nothing sexual related' and then on to Urology...1 specialist laughed and told me the symptoms were all in my head and prescribed me antidepressants...The second got to work with Cipro, Doxy and all sorts but has given up now and told me to exercise and drink water.

      There will be someone out there. I just can't live with this pain much more, it is driving me mad.

      Thanks again

  • as12829
    as12829 daniel76051

    Posted

    Your wife is having a baby so this kind of says it is not an STD.  Her doctor would have caught anything she may have gotten from you by now.

    I am wondering if it is not nerve damage?   Do you ever notice any numbness or tingling?

     

    • daniel76051
      daniel76051 as12829

      Posted

      Funny you say that.

      I read on another forum of a user who couldn't find answers to his prostatitis diagnosis/pains. He had a lower back injury. After all of the antibiotics etc he was sent for an MRI which showed it was his nerves that was causing all of the pelvic/groin/leg pains.

      Around the time I started experiencing symptoms I was diagnosed with Lumbar Spondylosis which showed my discs were crumbling in lower back. For the last 2 years I have been experiencing very bad pain in my lower back, random pins and needles in my right arm and leg and tingling in my thighs. I went to the doctor this morning and have been referred to Osteopathy for an MRI but this will probably take time.

      I couldn't imagine nerve damage would be behind the tip of my penis being red and the discharge? I also read somewhere that the discharge may be irritating the opening which is causing the redness. But it's another lead I guess.

    • daniel76051
      daniel76051

      Posted

      And also my partner has been tested throughout pregnancy for everything and has been clear. She has also been to the sexual health clinic a year and a half ago and was clear on their tests like me. I think my anxiety comes from reading about this Mycoplasma genitaliem within the last couple of days that has brought all the concerns. Apparently NHS do not test for this in routine sexual health checks which is why I have now paid for one. You would have thought they would have warned you about the STDs they do not test you for before giving you the all clear and allowing you to walk out he door and go through a new investigation with Urology.
  • dcooperxyz
    dcooperxyz daniel76051

    Posted

    Prostatitis does vary from person to person and causes a myriad of symptoms . Certainly most of your symptoms seem typical of it . Pain in the tip of the penis is a very common symptom of it and I’ve had it myself . Although I’ve not heard of “ red” tip or discharge from prostatitis to be honest. But as I said,everyone has a different experience with this condition. 
  • justin18892
    justin18892 daniel76051

    Posted

    Given that you have done everything possible to eliminate a bacterial cause, I would suggest going to see a pelvic health specialist to get a pelvic floor assessment. Tip of penis pain and inflammation of the meatus is a common symptom of cpps.
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