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confused

Posted , 4 users are following.

pauline36422
pauline36422

happy xms  to all my friends,

but can anyone answer this question please. after having pmr for 5 years 

with pain all the time.   to just pain in 1 shoulder  and  lower back. from 5 am  which goes  within 1 hour  of getting up.   i have learned that creatins wake up at this time   but the pain goes  befor  i take my pred.     this confuses me.   i have now upped my pred from 2  to 4 mg. but will go to 5 in a couple of days if the pain is still there.  mmmmmmmm xx

 

0 likes, 9 replies

9 Replies

  • EileenH
    EileenH pauline36422

    Posted

    Have you told your doctor about the night pain in lower back? There is another form of arthritis which can present very similarly to PMR but which affects the spine - and the pain is typically at night. Though you'd think it would be earlier than 5am - most people have this pain about 2am or so and it wakes them up.

    Otherwise it could be that the shoulder and lower back pain are due to back muscles being very tight and they don't like the position you are in in bed - once you are out of bed they relax a bit and the pain improves.

     

  • pauline36422
    pauline36422

    Posted

    yes ieleen i  had exrays  which were all clear.. but that would only show bones and not anything else.  wouldnt it.  it wont show inflamation willl it,  but what would a scan show,   there must bw something giving me all this pain  x
    • EileenH
      EileenH pauline36422

      Posted

      I was told my low back pain was due to wear and tear and I'd have to live with it - by an orthopaedic specialist. The pain specialist and physios saw the muscle problem as soon as they examined my back, it was as hard as boards. It isn't there any more - because the muscle problem has been sorted out by them. Physio/sports massage therapist might be able to give an opinion and help perhaps.

      I think the low back inflammatory arthritis I'm thinking off needs special angle x-rays - must check about that.

    • pauline36422
      pauline36422 EileenH

      Posted

      ha ha sorry eileen i replied to myself instead of you, and i have only had 1 glass of wine
  • pauline36422
    pauline36422

    Posted

    well thanks eileen  i am going on holiday on boxing day. for 2 weekss. in the meantime i have got a soft cushion to sit on  see if it helps.  but when i get back, a am going to get  serious about sorting  my pain  . i took your advise earlier about  raising the pred to 5 mg. i have gone to 4 mgs  so far if thats not enough i will move up to 5.   se what  happens.  thanks for all your infoe what would we do without you, 
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