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Confused

Posted , 5 users are following.

Frogwartz
Frogwartz

I was diagnosed with Bx last year after dealing with a severe aspergillus infection, called ABPA. The pulm Dr showed me the CT scan and I could see how much wider my bronchial tube was in comparison to my artery. I had a second CT scan done 6 months later, and wasn't shown the scan. This second scan was sent to a new pulm Dr closer to my home as I was thinking of changing Dr's. This new Dr says she doesn't see Bx on the 2nd scan. But they also didn't even bother to take my vitals until I asked about it. I have researched Bx since my diagnosis and found that it never gets better, but can get worse. I have an appointment to see my original pulm Dr that diagnosed me last year. I have no clue as to how I should handle this.

1 like, 3 replies

3 Replies

  • Frogwartz
    Frogwartz

    Posted

    Just wondering if there is a limit on how many posts one can make? My link to start a new discussion isn't working. Also wondering how many people on here are nurses. I've noticed quite a few so far.

  • tony_15641
    tony_15641 Frogwartz

    Posted

    My husband as got bronchiectasis been telled it's for life they can keep it under control at moment he on tab now course antibotics don't know if it's the bronchiectasis what is making I'm tired and confused but tabs don't seem to be working there times when he get down in dumps with not being able to breathe propyl also other health problems he as got

  • elizabeth49611
    elizabeth49611 Frogwartz

    Posted

    Frogwartz,

    I think we are all a little confused when it comes to recieving information from our doctors. I have found out that doctors don't know everything. And when they don't, they have a tendency to fall back on what they do know and mimialize what they don't know. My specialist in Indiana (we moved away a year ago) was not familiar with Bx, but did his best to treat me. He told me once that he thought he was missing something in treating me, so he refered me to the Mayo Clinic.

    I now live close to a major city, so I do have a specialist that is familiar wiht Bx.

    Ask questions, if the meds that you are taking now, are not working, talk to your doctor about changing them. 

    Take someone with you that can ask questions as well (I always think of ??s after the appointment) also to help remember the information that the doctor gives you. (My husband and daughter came with me when I went to Mayo).

    At your pulmonary doctor's appt, you should be given a breathing test. And maybe a ct scan, if you haven't had one in awhile.

    Beth

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