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Confused about GCA diagnosis

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pam33879
pam33879

Hi

Can anyone give me any advice.  After visiting A&E 3 weeks ago with severe pain on right side of my head, I've been told its GCA and I need to have a biopsy (this got cancelled last week and I'm still waiting).  I was given a repeat prescription form to hand to my GP, which I did, I picked up my prescription today and he has said I can't possible have GCA with an ESR of 18 and I'm to half my dose of Prednisolone from 30mg to 15mg, I didn't think that you could just reduce the dose that rapidly.  I can't see my GP until Friday and don't know what dose to take tomorrow.

Any info or advice would be greatly appreciated.

Thanks

0 likes, 20 replies

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  • doreen25667
    doreen25667 pam33879

    Posted

    GPs can be difficult! I saw another one in my practice and he dismissed my headaches as " everybody gets headaches. You are not unique just because you have GCA!" My blood pressure was also very high and he decided I had "white coat syndrome", even though I was also being treated for high blood pressure at the time. I have decided to avoid seeing him at any cost.

    Now family problems are affecting me and I am getting the shakes and feeling really low. My son has come back after 18 years marriage and I am trying to be there for both of them and the children. Not easy!!

    • EileenH
      EileenH doreen25667

      Posted

      We lived far too far away for ours to "come home" - so we invested some of our "pension" in a flat for them to live in and they pay us rent. Everyone satisfied biggrin

      I really couldn't live with my daughter for more than a week! I had pre-eclampsia with her, my BP went back to normal as soon as she was born - I'm still allergic to her...

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