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confused about GS

Posted , 4 users are following.

julie05277
julie05277

Hello there..

I have recently been told I have elevated Bilirubin levels of 32.3, I have suffered over the last 18 months with various gastric problems and now see a very good GI (Dr Paine) My father has Haemochromotosis and when tested I carry one of those genes.. are these conditions related ? I am waiting for cortisol levels to come back and also have low vit D (29). Any advice would be helpful. My symptoms have been as follows:

fatigue

weight loss

loss of appetite

abdominal bloating/pain

right side rib pain (back)

nausea

dizziness

low mood.

thanks in advance 😘

0 likes, 5 replies

5 Replies

  • joel_57234
    joel_57234 julie05277

    Posted

    Hi Julie05277,

    There is a Facebook group called life with Gilbert’s syndrome and they can offer a lot of advice. I have most of the symptoms you have bout haven’t discover anything that worked. Also I had allow vit d 3 years ago.

    • julie05277
      julie05277 joel_57234

      Posted

      thanks I will take a look at it. It really is difficult to deal with. I have only eaten porridge twice a day for the last 1w months and have fortisip to keep up my nutrition, I was told by my original GI that I had gastroparasis bit now they are leaving towards GS. Thanks again and wish you well soon 😁

  • joel_57234
    joel_57234 julie05277

    Posted

    Hi Julie05277,

    There is a Facebook group called life with Gilbert’s syndrome and they can offer a lot of advice. I have most of the symptoms you have bout haven’t discover anything that worked. Also I had allow vit d 3 years ago.

  • Kwenda
    Kwenda julie05277

    Posted

    For many of us with Gilberts some relief is obtainable with a careful diet.

     

    For some, if you eliminate ALL spices and herbs the bilirubin level will drop after a few weeks.

    I have proven this for myself.

     

    Also what we eat affects us in many ways.

    Check for a dairy allergy and a wheat allergy; both can cause quite severe bloating and an inability to digest dairy is very common.  I limit my dairy to just a drop of milk in tea and a small piece of cheese and this helps.

     

    Then see these two BBC websites for the effects of food on mood.

     

    https://www.bbc.co.uk/news/health-34208623

     

    http://news.bbc.co.uk/1/hi/health/2264529.stm

     

     

    Dick

    • julie05277
      julie05277 Kwenda

      Posted

      Thankyou so much for your response, the sites are really interesting 😁

      Hope you are well xx

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