Confused about my migraines, what should I do?

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Hello I'm new here, I have been reading a few post and it would seam you are under the specialist at hospitals?

I'm a bit confused about my diagnosis by my gp. I have had 2 brain scans in the last 2 years as syptoms have resembled a stroke.

I get pins and needles in my left arm my face goes numb I get a blinding pain right side of my brain then I pass out I can't talk properly my ct scan show that I didn't have a stroke or any abnormal activities in my brain.

but in Feb this year it got worse.

I was shopping and it happened a lot quicker where it seams like my eyes are looking down a kaleidoscope and I passed out for 15 min it's like I'm drunk and can't talk iv got vertigo I'm nauseous and was rushed to hospital.

My dr said its migraines as ct scans are clear and put me on propranolol but I had a very bad reaction to them so I'm now on topiramate but I'm half my life now asleep with these tablets as my dr keeps upping them to get my body used to a high doss slowly.

I'm really depressed at the min woundering what my quality of life is going to be like.

So im woundering should I have seen a specialist by now not just dr and ct scans?

Should I be told what type of migraines I have

And will I get used to tablets and not feel so tired any time soon.. I feel like iv lost wks at the min.

This is my 3rd mth on topiramate.

It didn't help when my pharmacy double the strength of my topiramate last mth by mistake.

Thank you for taking the time to read my post

Tania x x x

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4 Replies

  • Posted

    In London Dr Louis a Murdin at Guys hospital and Dr. Lambru at St Thomas's both specialise in treating migraines. Privately, Professor Linda Luxon at the London Hearing and Balance centre is highly experienced in vestibular migraine.

    Hope this helps. You could Google them for more information.

    Good luck.

    Alexa.

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  • Posted

    Hi Tania

    I was prescribed topiramate too and it was thought t

    That a high dose should be given. I could not tolerate this drug at all and my specialist said that 30% of people in the trial could not tolerate it either. I was very spaced out and couldn't string a sentence together. I would forget that I had done things like leave the gas on etc door open.

    I would recommend that you do see a specialist. Mine is based at the Royal Stoke University Hospital in Stoke. His name is Dr Brendan Davies. He sits on the Headache Council and I have found him excellent

    I had Botox which helped for a while but after about 7 sessions this stopped having an effect.

    Last December he put me forward for IV DHE which is given intravenously over a 5 day period so it requ a hospital stay.

    This has had a massive positive impact on my well being along with now prescribing me Epilum and indomethocin.

    There is also a head piece he recommended called Calfrey which I am yet to purchase which also has apparently had good results.

    But first things first ask your gp to recommend you to a specialist.

    Good luck

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  • Posted

    Hi Tania,

    I recently had an operation to close a hole in my heart (apparently a 3rd of people have this) and my Mirgraines have completely changed nature - I no longer have nausea or pain. However I do have aura mir=graines still. Have you asked your GP about the heart link to Migraines?

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  • Posted

    i have had one bad attack about 2 years ago and i was taken to hospital. i had all symptoms u have described. i had a scan and didnt show any abnormality. i was referred to neurosergeon. i have hermiplegic migraine and im on Nortriptyline and Rizatriptan and it worked. Just had another attack about about a week ago and my head is pounding..this time had terrible side effects from Rizatriptan so i have been put on sumatriptan..its now about 3 days and no change at all.. i cant function so going to GP again..
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