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Hello everyone. Im new to the group.
Im after some advice. I apologise if this is a long post. Please bear with me.
My symptoms started in 2006 after my mum died, at first I thought I had flu, but this soon progressed to me be in so much pain I couldn't move, I was in unbearable pain in every part of my body. I couldn't even move my fingers without crying. This would last until I had forced myself to move for over 2 hours. I had 2 small children and was a single mum so no choice but to get up, otherwise I probably would have killed myself. Soon after I was diagnosed with RA, I was started on pain killers which helped a bit and my symptoms were reduced. I then moved to different area and so had a new consultant, he started me on sulfasalazine and these worked really well. I then became pregnant in 2009 and stopped all medication I had an awful time so once I had my daughter the GP started me back on sulfasalazine and I went back to the consultant who despite me saying I felt awful he said that the medication had cured my RA and as he was retiring he passed my case to a new doctor who told me I have fibro and she didn't want to see me again.
Now after being treated with a number of pain killers I have really bad painful clicky joints and my pain killers not working I'm wondering if I do have RA after all. Im worried that I'm going to end up back to the stage where I can't move.
I have to go for surgery on my jaw and possibly on my cervical spine.
I have 4 children now and my youngest has spina bifida and is unable to walk so I can't go back to how I was.
All my bloods came back positive for RA except my HB goes up when it should go down even in pregnancy so I'm just weird.
Should I go private or is this just fibro. I feel like I did back 2006 before it got bad and I'm getting worse.
Thank you for reading to the end.
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