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Hi I'm new here and just looking for some understanding from anybody in a similar situation or has more experience than I do.
my history is a little confusing with no real diagnosis off anything.... so far.
I am a 38 year old female and for the past 3-4 year I have suffered fatigued a general feeling off unwell visited doctor several times who has now rectified anemia and low vit d, I have no issues with diabetes, celiac or thyroid apparently either. My CRP levels are good I have no infection inflammation, my blood pressure and cholesterol are normal.
Last year I developed what they think was a virus that completely wiped me out. The main symptoms of this are balance issues, wooziness in head, brain fog, fatigue, tension headaches, titinus, heavy head, motion sickness, problems with fluorescent lighting and computer screens and a general feeling off being unwell. This has lasted around a year. I am back at work now but still suffer most days with one or all off symptoms but it has eased since the early days when it was 24/7.
ent ruled out ear issues and neurology have ruled out anything neurological although have sent me for MRI to be sure it's not MS.
this is due to my other symptoms, I have numbness in feet periodically, pins and needles and numbness when sitting for any length of time, brain fog and such.
I have also a possible rosasea/malar butterfly rash on my skin, petacheia rashes on arms (had two in recent weeks)sore legs like fatigue when walking up stairs, fatigue arms when hoovering or doing hair, sore hands when doing fine motor such as cutting with scissors, sore muscles around knees, aching lower back, fatigue continues. Due to this my doctor ordered an ana blood test and an anti DNA test, both came back normal which I was told probably ruledout lupus.
However neutralist suspects it may be systemic autoimmune?
ive also been referred to dermatology for further testing by gp and neurology asked whether I had been referred to rheumatologist.
if it's not lupus what other autoimmune could it be,. I thought they would have also came up in ana. I'm getting confused and so frustrated as It appears no one can find anything wrong with me. Which is odd because some days I feel far from well.
where do I go now.
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