Posted , 4 users are following.
Hi everyone well as I've talked about on a previous post I saw prof zak who said I didn't have trigeminal neuralgia well I recieved her letter a week before I was due to see her (not her fault..admin) in her letter she had put trigeminal neuropathic pain with some symptoms of SUNCT/SUNA but because my sinuses get congested and runny on both sides I don't fit criteria so I was feeling very frustrated as she wanted me to go to group psychology meetings but no other treatment options? So in my desperation I payed to go private to see Dr Matharu saw him last Thursday and have come away a bit miffed he said he doesn't no for sure what I have but that I don't have tn he thinks I have either facial migraines..newly persistent daily headaches or hemocrania continua?? He said I've got to stop 3 of my meds continue to see prof zak till my appointment on the nhs with him comes through which could be up to a year and to tell prof zak that he disagrees with her diagnosis of trigeminal neurapathic pain??? Omg I think I've completely confused things! So saw prof zak was completely honest told her I'd seen him etc she said each consultant is guna say you have whatever area they specialise in which I agree! I asked her about nerve blocks or sphenopalatine gangling blocks she said I can see her and her neuro dr chong in a joint clinic as it's not 100% sure what I have she also has given me indomethacin to try for month which will rule out if I have hemocrania continua. So that's what's been happening...I feel completely confused as I still think I have tn what on earth am I to do????
0 likes, 5 replies