Confused again or still
Posted , 7 users are following.
will Predinsone get rid of pain from fibromyalgia? The rheum. Wants me off predinsone. However, I was down to 2 mg for 7 days and then I crashed: pain, hips, shoulders,neck and extreme fatigue. I went back to 4 mg... Pain gone fatigue less but never totally gone.
I feel the rheum, believes I have fibro and not PMR.. He suggested cymbalta... I don't want another drug...
thoughts???
thanks, judy
1 like, 5 replies
EileenH judytal
Posted
Why is he so desperate to get you off pred if you are OK at 4mg? It is a low dose with next to no side-effects. If that keeps you mobile and the symptoms return after a week at 2mg that would be enough for me to say that'll do - it isn't going to kill you and if it does the job what's wrong with that?
Find another rheumy if your GP won't manage you at this level of pred.
ptolemy judytal
Posted
lodgerUK_NE ptolemy
Posted
This bit sticks in their heads, then people come along who need long term steroids and conflict begins in their brains.
ie long term, stacks of side effects - must get them down asap.
That is why we educate our GPs and tell them not to be afraid.
Also most practices will never come across a GCA person and with PMR they may have 4 or 5.
As both are on the rise and we are educating them, it will get better hopefully.
judytal
Posted
Again, thanks, all the best to all.
judy
Nefret judytal
Posted
I also have peripheral neuropathy and the Fibro pain does get mixed with that sometimes, but for me it is a completely different pain to the PMR pain. I don't get any stiffness either (apart from that caused by anno domini).
I am now on a maintenance dose of 5mg Pred for life and I'm not bothered in the least by that I also take amitriptyline which copes very well with both the nerve pain and the Fibro. I am also on a low dose of Gabapentin - this does work for me, but if I go any higher, I tend to sleep 24/7 - which ruins my social life!