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Confused and worried

Posted , 12 users are following.

Blckiris
Blckiris

Hello,

 I was just told last Friday that I needed to get some follow-up testing due to my iron and I haven't heard back from my doctor yet. I'm concerned and worried because when I went online and I checked my ferritin levels it said  I was close to 4500 and I have a 66% saturation level.  I don't know if hemachromatosis is what I have but with all the research that I have done this leads me to believe this is what I have and I don't know how bad these levels are and how concerned I should be.  Can anybody please shed some light on this?  I know these levels are high but I don't know how high they are considered I'm hoping to hear back from my doctor tomorrow from the follow up blood testing but anything anybody can tell me will help.

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  • Barb1028
    Barb1028 Blckiris

    Posted

    It definitely sounds like hemochromatosis.. it seems your ferritin is very high. My ferritin is 13 and my saturation is 10% last reading.. keep in mind I have had phlebotomy's for the past year and a half. Just do what the doctor says it does get better.

  • peggy96967
    peggy96967 Blckiris

    Posted

    After my 1st 12 phlebotomies, my ferritin went from 1,000 to about 1300. with the saturation going from around 70 to close to 90.  After 2 more years of bi-monthly and then monthly phlebotomies, the ferritin is now down to 30 with the saturation % being 12.
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