Confused at results

Posted , 3 users are following.

Hi all,

I'm new here so firstly hello , secondly I'd like some help as I have been having lots of problems since april 2013 and I'm kinda getting fed up at the moment and ill explain a little more.

It started off that I have having pins and needles in my hand and shorting pains go down my arm, I had a burning sensation in my armpit, and back ache so went to doctors who sent me for MRIs. All this time I was limping, couple of weeks later after going for a walk round the nec, I had really bad back ache and sat down went to get up and my legs were so weak pain was so intensive, I just cried as I tried to walk to the car, got to the car to find I could not lift legs or stand up, I needed help, my husband came home and with his support I was able to foot shuffle back in to the house. This cleared up after about 5 days it was like legs got stronger every day. It then happened about two weeks later same thing again I start to do normal life things like any normal person and then my legs go again. This is now down to a 2/6day cycle.6 days after I have come off crutches it happens again, I get crampy muscle squeezing pains in the top of my legs down to my knees.

I get a shooting pain down leg and and then it gives way, I also get a lot of pain behind knees.

It's is not my only symptoms,

I get brain freeze, I have been known to put my arm under the running water instead of the kettle, I also start have a convo and forget all line of words, I also get words mixed up like get the milk out of oven and other mad stuff.

I'm lucky if I get to sleep before midnight then when I do get to sleep if I'm not tossing and turning, I do have a nice sleep but then can't get up in the morning, feel tired again within the hour feel worn out. Takes me two days to clean house now as I have to rest between most jobs.

See brain freeze can't remember what other symptoms I get lol. I get burning feelings in my feet or they go ice ice cold.

I have a vit d deficiency and I have low iron. Love chewing ice.

I'm on tramadol, naproxen and I am on 40mg of amatriplyn, nothing seems to easy the pain when it comes. I am starting to feel useless.

Sorry to have rambled on but I've had b12 result today and it is 335 doctor says that's fine I'm confused and iam trying to find answers and better ways to help me xx

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  • Posted

    Hi. Have you supplemented with B12 at all?

    I would advise that you get an active B12 check done- this will give a clearer picture. The serum measures all B12 in your blood, whether it is active or not.

    I went to St Thomas in London to have the test done - easy to arrange. Also consider MMA and homocysteine. These tests need to be paid for, the Holo TC (active) is £18 I think, the others more. Once you have these results you can argue your case with Dr.

    They should give you loading injections regardless of your serum results because of your neurological symptoms- but most GPs will be resistant to idea unless they have knowledge of subject and most don't.

    Was your folate and ferritin tested too?

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  • Posted

    Hi there

    im glad you got a reply as I'm new to all this too.  I'm going for my 3rd injection today as I've just got back from holiday and couldn't have them last week.  At least I got 2 done the week before.  I have noticed that I don't get the dizzy woozy spells that seem to go whoosh over my head.  I do have trouble sleeping and when I do drop off wake up early as I have done today.  Then I feel tired and don't want to do anything.  I've always been active so I just put this down to getting older.  Like you, if I go for a walk my legs ache and I struggle to move later.  

    I can't give any advise as its all new to me but there are plenty on here that will.  I hope you get the tests done that Blue Dragon has advised.  This will confirm one way or the other and I hope you feel better soon.

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