Confused by recent iron panel results.

Unfortunately, homozygous H63D is not considered problematic haemochromatosis. The reference range of ferritin for a non-menstruating woman is 30-300.

A TS% >45 is a marker for haemochromatosis. Serum iron reference range is 5-30 and 31.26 puts you slightly over that range, but it could be lower next time. CRP range is <5. Mine is always <1 but very recent test was 1. I might have a low grade UTI - to be tested.

So you can see that your current levels are not to be concerned about. Ask your dr to keep monitoring it. Maybe every 6 months at most.

My husband is homozygous H63D and I am homozygous C282Y. At diagnosis his ferritin level was 552. He did not need many vx to bring it down and he has not loaded iron since them (although his last couple of serum irons were over 30 but his ferritin is still low).

It is a shame that the Blood bank has your suspected angina problem on record, otherwise you could donate blood (you do not need to have high ferritin to donate blood). But donating blood is beneficial for most people (unless they are anaemic). Perhaps you could ask your gp to send a letter to the Blood bank telling them that the problem was only suspected and was not an issue. Should he do that, do NOT mention haemochromatosis to them.

As for informing your relatives, go ahead and do so yourself. Show them your genetic results if necessary. For some, the problem could be worse than yours and at least you have given them the headsup. It could be worse for their children if the partner carries the C282Y HFE, so really, it is best to know. However, they may have to pay for a genetic test themselves unless they have a more open minded and knowledgeable dr. First degree relatives of someone who is homozygous is entitled to a free genetic test. But it will depend on the results of their Iron Studies if their dr would choose to order one. A lot of us have experienced that a most relatives just don't want to know.

BTW, a lot of haemochromatosis symptoms are also the same as menopause symptoms. I often have to ask myself, is this because I am in surgical menopause and my oestrogen has run out, or is it HH? Usually, an increase in oestrogen solves the problems.

Maybe check out your hormones, also make sure your Vit D levels are good (use a practitioners brand of Vit D3 forte drops if necessary), and also your Vit B12. If B12 is low, ask your dr for injections, which work better than tablets for some people. Some of us just don't absorb these vitamins very well. My husband does not absorb B12 even though he eats meat, and I don't absorb Vit D even though I live in the tropics and eat food that contains Vit D. A deficiency in either of these causes some major problems with health.

I hope this helps, eases your concerns, and puts you on a track to help yourself.