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Confused by symptoms

Posted , 7 users are following.

Nicnicnic
Nicnicnic

Hi I hope you don’t mind me posting. I have recently been experiencing a lot of symptoms and just don’t know what it could be. I am wondering if anyone with fibro can relate or feel that it could be fibro. 

I have a horrible pain in my lower back when it’s there it’s like a deep gnawing ache - sometimes it’s constant other times it will be like a wave of pain.  It can spread down into my legs, my pelvis even round towards my bottom. 

The leg pain I feel is like an ache- it feels like I need to stretch but it doesn’t relieve the pain.  I also get a similar feeling in my left shoulder which radiates down my arm. 

The left side of my body is mainly wher I feel the symptoms. Although the back pain can be across all the back. 

Maybe unrelated but I also seem to emptying my bowels more often and get tingling in my legs, feet, arms and hands. I don’t feel I have any tender points which makes me feel this may not be fibromyalgia. 

Thank you so much for taking the time to read. 

0 likes, 15 replies

15 Replies

  • louise27518
    louise27518 Nicnicnic

    Posted

    Hi there, skerry to heat this, it’s sounds exactly like me except mine is right sided shoulder paid and right abdo pain. I have had several tests that show nothing so I am wk seeing if

    Mine to is fibro, no other tenderpoints either though. Do you have fatigue with it? 

    • diane_11957
      diane_11957 louise27518

      Posted

      Hi,

      Yes I get very fatigued. I also get pains in shoulders especially the left, with burning and tingling sensation in both legs and feet.

      You’ve got to listen to your body and rest, especially from stress full situations. You will get good days and bad.. you’ve just got to learn not to over do it on your good days.

  • diane_11957
    diane_11957 Nicnicnic

    Posted

    Hi,

    I was diagnosed with fibromyalgia in April 2017. It started with back and sacral pain, it then radiated to my hips kness and feet. It felt like  a serious bout flu /type virus I was bed bound for 7 weeks. I then discovered meditation this really helped me. I had to leave my job due to this illness I felt like everything was being taken away from me. I m flaring at the moment but now I have started to embrace the illness instead of  dreading it and thinking why me.

    You’ve got to ask your Gp to refer you for further investigations. I got diagnosed in 2017 which I now know to be quite  quick to other people’s diagnosis. Try not to get stressed as this will trigger fibromyalgia.. I hope this has answered part or all of your questions.

  • Nicnicnic
    Nicnicnic

    Posted

    Thank you for your reply’s, I haven’t been diagnosed yet but am scared by the symptoms. 

    Doctor is baffled and is doing bloods and told me to go back if still in pain in a couple of weeks. 

    I was concerned about bone cancer among after horrible things. The pain in the back is just so weird feeling and not like a back ache. It hurts whether resting or moving and is not hurt when pushed. I don’t have tender points which made me doubt fibromyalgia. 

    I do get tired and often feel like I could just sleep during the day, tho don’t actually nod off lol. 

  • paul75665
    paul75665 Nicnicnic

    Posted

    Sorry to hear about all your problems.

    I was diagnosed with Fibromyalgia about a year ago and I get pains and aches in the same areas you have mentioned. I also get tingling feelings in my limbs as well. Fibromyalgia is also known to cause digestive issues, IBS or IBS type symptoms which I suffer with too, and can include frequent bowel emptying.

    To me it sounds very much like you could be suffering with Fibromyalgia, not sure what investigations you've had to date but be prepared for the long haul of tests and elimination of other conditions before Fibromyalgia is diagnosed.

    All the best for the future.

  • diane_11957
    diane_11957 Nicnicnic

    Posted

    Hi Paul,

    Yes it has affected my digestive system I have IBS as well.. it’s also affected my bladder. I have brain fog all of the time.

    It’s best to go  out into nature to lift your mood when your well and not flaring.

    • paul75665
      paul75665 diane_11957

      Posted

      Hi Diane

      I get a lot of brain fog too, but the worst part for me is the constant IBS symptoms. They aren't bad, other than bloating and associated pains, but it's there everyday. I also know when I'm at my worst as I get this really weird left eye twitch and it feels lumpy, only the left eye though, my right one is fine.

      I'd love got be able to go out more, but my Fibro renders me pretty much housebound, a lot due to the anxiety I get when I do go out. I'm always worried that a severe flare up will happen when I'm out and about, which makes me not want to venture out. I'm used to country life as my father has always worked on farms so we've lived in small villages all our lives with easy access to the countryside. I'm now stuck in a town, right next to it's busiest road junction and railway line, with a lot of loud, brash neighbours, and I know it doesn't help my condition. I used to complain about living in the middle of nowhere when I was a child, now I wish I was back there.

      Take care and all the best to you.

    • diane_11957
      diane_11957 paul75665

      Posted

      How lucky were you growing up in the country.. I think most of us  fibro  suffers  would do anything to live in the country. I rarely venture out reason being I’m to larthagic to go out. I had to have an ESA assessment in London I was so shattered  I fell a sleep in the cab on the way back, everything is so exhausting. My left eye also twitches from time to time my eyes weep. I have spasms and cramps due to ibs.. I can sometimes look nine months pregnant however Ive just  had to come to terms with the condition... it’s good to talk and knowing that other suffers totally get what your talking about!

      Chin up to all you fibromyalgia suffers.

    • paul75665
      paul75665 diane_11957

      Posted

      As I said, at the time I didn’t really appreciate the countryside when I was younger, all I wanted to do was be with my friends, which was made difficult by living in the middle of nowhere. I could really do with that way of life now.

      Reading about your symptoms makes me feel like I’m standing in front of a mirror, we sound so alike. And don’t get me started with the benefits system. I recently had a PIP award stopped. Thing is I’m in worse physical and mental state now than I was a year and a half ago when I was first awarded it, and they decide to stop it. Fair enough the government are trying to save money in the benefits area, but here’s where it’s really messed up. My sister in law has been diagnosed with CFS, I’m diagnosed with Fibromyalgia, CFS, IBS and Anxiety. She can have days where she is able to have a life and do things, but she will pay for it. I however am housebound and in pain and sickness everyday, having no life at all, and yet she is entitled to PIP and I am not??? Where’s the logic and fairness I need the system? I felt so strongly about this I have had a serious rant at my MP, he is looking into it? Yeah, right! Still that’s an argument for another forum.

      Do take care and wishing you all the best!

  • louise27518
    louise27518 Nicnicnic

    Posted

    Would advise getting your hormones checked not sure of your age but I am sure mine is menstrual cycle related. Although no diagnosis for anything as yet, I’m just guessing!! 
  • Nicnicnic
    Nicnicnic

    Posted

    Thank you for replying, do you get back pain if so where and how does it feel? 

    I am 32 and female waiting for blood test results just the usual ones and thyroid being tested. 

    I originally thought it maybe bowel related but my tummy symptoms eased and now it’s the back pain that isn’t so much real painful but is constant, gnawing and seems to nag away all day. 

    Do you get relief from symptoms at bedtime? 

    • louise27518
      louise27518 Nicnicnic

      Posted

      In my lower back mostly sometimes up my right flank. 

      My bloods always come back normal, it’s very frustrating. 

      I  struggle with my nervous system at night along with the pain in my shoulder mostly. I take 2 magnesium and parexerimal and do get 6-7 hours which helps. 

      Hope you get some answers and try not to let thinking about it consume you, it adds to the stress. 

  • diane_11957
    diane_11957 Nicnicnic

    Posted

    Hi,

    I didn’t think that mine was fibromyalgia after  I was diagnosed , due to my nervous system.. I can be typing and my finger will  just hit the key involuntary. I started to research symptoms  and unfortunately it’s more likely  fibromyalgia . There are so many symptoms that most consultants  are baffled  by the symptoms  like arthritis as mine flares when the weather is damp and wet.. I could be a weather forecaster.Lol

    You will get use to it , that’s if it is fibro you’ve really got no other choice.

    Best wishes try to keep positive.

  • Magpie2me
    Magpie2me Nicnicnic

    Posted

    Hi. Of course we don’t mind you posting. That is what this site is for Nic. You are as important as anyone here. I think It could be Sciatic pain you are experiencing sweetie. Try to see a Osteopath if you can. They are gentle manipulators of muscles and they are qualified to realign and also specialise in those areas of Sciatic issues. Sciatic problems can cause excrutiating pain in the lower back and down both legs or it can radiate down one leg. I would get this checked out. Don’t worry. You will get to the bottom of it. Maggie x
  • mary31001
    mary31001 Nicnicnic

    Posted

    Hey my friend......I relate to all your suffering.....behind all of our shared symptoms you should look into parasites !

    Trust me that is the common root to all of these symptoms.....it is so commonly dismissed by all of our Dr.'s. Do some research and please trust me that is what is going on in your body!

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