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Confused .com !!!

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helenemiles
helenemiles

PMR or not PMR ??

I had my appointment with the rheumatologist this morning who despite the registrars thoughts 2 weeks ago is not convinced that I am presenting with PMR ....... 

The contradicticting factor being  inflamation levels (not sure if that's the correct technical term ) was back to normal , but this could be as a result of the steroids !!

My age !!!!! This I did find a little hard to understand , as we are all do very different !! 

my bodies response to pred within 24 hours and the dramatic deterioration when reduced from 20 to 15 within a 24 hour period . 

Now bit of a mystery of which I am left feeling more helpless and alien like !!

she has ran more detailed bloods : thyroid function , liver function , repeated vit d' vit c , FBC ...

MRI of my lower back and Dexa bone scan 

she also wondered if early menspsuse (2011) completion could be a contributing factor , or viral infection !!!!!

help .......

all I know is that I feel rubbish ... My body has changed , the symptoms have crept up over time ... Crashed 2 weeks ago 

pred has made a dramatic difference in the pain to my elbows , deep shoulders and back .

i am now exhausted , learning to go with the flow ,and manage the muscle pains that have gripped me following the completion of the most simplest tasks .... So frustrating ... Like doing an hour weight lifting just lifting the kettle !!! 

have booked a session with a Bowen therapist for Thursday as I hope it will help with the neck and lower back pain that that I has been lingering .

any thoughts , advice ,pointers,would be greatly appreciated right now (:

helene 

1 like, 21 replies

21 Replies

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  • constance.de
    constance.de helenemiles

    Posted

    Aren't we all?  (Confused that is!).  Hope you get some answers soon.  It's a long, twisting, road you're on!!!
    • helenemiles
      helenemiles constance.de

      Posted

      Ahh thank you .

      it has appeared to have been a bit of a bumpy road over the past 18 months when I have stopped and reflected . Lots of subtle symptoms that you just work through .... Until bang .. The body then fights back .

      lets hope I will have a better understanding in a few more weeks .

      big thank you to all for your kind support .

      helene 

  • Oregonjohn-UK
    Oregonjohn-UK helenemiles

    Posted

    Is ea, is cuimhin liom go maith é.
    • helenemiles
      helenemiles Oregonjohn-UK

      Posted

      Sorry for my ignorance but I was unable to translate your message x 

      will have to have a look on google languages .

      take care 

      Helene 

  • pat38625
    pat38625 helenemiles

    Posted

    Hi Helen was reading through your post and oh dear you are going through the mill with no definate answers (well not yet anyway).  You brought it all back to me, started on 20mg of pred and when I was in the shower, just washing, I felt I was in a boxing ring, even drying myself with a towel was exhausing.  It will get better Helen, I hope you get sorted out real soon.  You take care now.  Pat
    • helenemiles
      helenemiles pat38625

      Posted

      Thanks Pat x

      its certainly not something I would wish upon anyone ... 

      I do feel as if I have been in the ring with Mike Tyson !! 

      I felt lovely this morning when I awoke .. But having been up , made my sons packed lunch ., pottered etc my body now is becoming painful by the minute .. Such deep awful dragging pain and the tiredness is unbelelievable ... Fit for the abatoire me thinks lol 

      all I can do is take it day by day .

      and see what the next lot of test show .... Something is definitely not right at all .

      i hope you feel a little better later today x it's beautiful and sunny here in Coventry so that has popped a smile on my face x

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