Confused.. labs say one thing but symptons say another.
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About a month and a half ago my TSH was was still high at 6.7 (range 0.27 -4.2) FT4 at 1.36 (range 0.9 -1.7). So the doctor raised my levo from 50 to 75 mcg. Two weeks ago I had my levels checked again. They came back TSH 2.00 and FT4 1.7( same range as above ). I went back to see my endo this morning and said that I am still hypo because of my fatiuge, hair loss, muscle sorness, NO achilles reflexes, cold hands and feet, just feeling of unwellness and he said he would like my TSH lower still. But... for 3 hours after I take my does, I feel speedy, shakey and cannot even tolerate coffee anymore. I feel I am hyper in the morning and hypo in the evening. I have a constant low grade fever and enlarged anterior lymph nodes left side of neck and one at the base of my skull which have been going on for 9 months now straight. Anyway.. my doctor again raised my does to 88mcg. He will not check my FT3. He said it was not important even though I know it is. Does the dose raise sound right even though my FT4 is at the highest end of range? Does it sound like I may have another issue going on besides Hashimoto's? I'm so tired of feeling sick all the time. But not sure where to begin to rule out other causes. I have no idea of other illnesses that may be lingering in my body... I'm beginning to think more than my thyroid is going on. Especially because my doctor said that low grade fever and swollen lymph nodes are not related to Hashimoto's. Any suggestions? Thank you all!
1 like, 7 replies
sweetmelissa
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shellyC19 sweetmelissa
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My name is Shelly and I am a nurse in the USA. I have Hashimoto's Thyroid disease since 1987. I am 54.
If you are in UK it is hard to get the doctor's there to order a T3 test. They rely on TSH alone (I think it is a cost saving measure), and that can be bad. Some people pay for it privately.
TSH should be in the range of 0.45 to 4.50 and your at 6.7 so changing your dose to 88mcg will help since you are still Hypo. Of course as the new medication dose builds a level these bad symptoms will subside. It can take about 6 to 8 weeks though to build a new level.
Hashimoto's is caused by antibodies in the body attacking the thyroid gland and sometimes people can run a low grade temp because the immune system is not calm and it can be part of autoimmune problems. It is not always a common symptom but it can happen.
Since you have swollen lymph and a low grade temp, please ask for a blood test for LUPUS another autoimmune condition should be checked. LUPUS is also autoimmune and can cause a low grade temp, muscle aches, a red butterfly rash on face, fatigue/tired.
Your FT4 is okay at 1.36 and is under 1.7. It should not go up too much higher unless you are not converting T4 into T3. I think you are. It is common to have medication doses change after blood work. FT4 does matter as it shows if you are converting it into T3, so maybe you can ask to see another doctor if this doctor is not willing to look at that.
Doctor's almost always start low and then raise the dose in increments. So this happens and they have to raise it from your prior dose.
I have had Hashimoto's a very long time and I am only on T3 as I do not convert T4 into T3. You need a good doctor who understands the thyroid and if you can please get an Endocrinologist there who knows more. Hashimoto's can swing a bit between Hyper and Hypo at times.
Please take the med on an empty stomach and 1 hr. before a meal. Also get some other blood work done if you can. Sodium, potassium, calcium, magnesium, ferritin, zinc, iron levels, along with Vit D.
Many of us are low in Vit D and there is linkage to Thyroid problems. You need your minerlas to be in good shape. Please take a multivitamin with iron, as it helps the body build the immune system up. I take a wome's daily one with iron.
Any questions, just ask.
Regards,
Shelly
sweetmelissa shellyC19
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shellyC19 sweetmelissa
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Please switch Endo's. I don't mean to be mean but the current doc is a bit ou of date and uninformed enough and you need a T3 level to help see if you are converting. Old doctor's are not up on current things and you will suffer!
Please tell the new Endo about LUPUS in your family as it can be a family trait and if left untreated it may cause damage to your kidneys.
It is easy ask your GP for a referal or call your insurance plan for an Endo they have on file. Make an appt. Just ask nicely for a copy of the records to his receptionst or med. asst. By law they have to give you your files and go to another doc. I myself had to do this years ago.
I know people who have LUPUS and you must be tested for it!
As to your FT4, you can stay on the 88mcg and give it a whirl or you can stay on your prior dose because at 2.1 you are doing okay! yes, if the T4 is at 1.7 it may go higher on the new dose, and you will have to back it off.
Let's look at LUPUS, and get the blood work done by a new doctor. I want all tests above and a Lupus test.
Keep me posted I care!
Shelly
sweetmelissa shellyC19
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Scazzoh sweetmelissa
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sweetmelissa Scazzoh
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