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My 14 year old son had poor hearing in one ear and as his speech was absolutely normal it was not detected until he was 7. After many appointments -mainly because I was in denial that there was anything wrong -a scan confirmed a congenital chloesteatoma. They new itwas this beacause he has never had an ear ache or infection ever in his life.Reluctantly aged 10 he had it removed by Nigel Padgham (now retired) and four annual follow ups said no problem ,all is well.The op he had aged 10 was done through the ear NOT behind it ,through the bone. His new consultant now says there may be some residual disease and seems adamant she wants to go in behind the ear. I will not allow this as I want him to continue swimming etc. How do I get the hospital to refer him to Great Ormond Street? East Kent Hospitals have just been declared ,'Inadequate' in the most recent inspection. He is my only son I want the best for him . Any advice please I am worried sick ???
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