Congenital Hypothyroidism
Posted , 4 users are following.
i would like to get in contact with otherparents that have had this condition in their newborn child
[i:023194d0af]This message was automatically imported from the original Patient Experience[/i:023194d0af]
1 like, 5 replies
sarahred777
Posted
Guest
Posted
Guest
Posted
Hi there,
Although I appreciate and understand your choice of not telling your son's school about his condition it can have a knock on affect.
Staff wouldn't jump to a conclusion that his condition is to blame if any problems appeared now or in the future. However, let's say he isn't quite hearing clearly some days but on other days he is okay, or he becomes clumsy?
Other children will soon pick up on any clumsiness and your son could end up being stigmatised as the 'clumsy child'.
His teachers do need to be made aware that at some point he may have hearing difficulties (hopefully he won't) but if he did and the teachers do not know of his condition they could soon start accsing him of being a poor listener, this could land him in trouble with the teachers which at the end of each school year will follow him on to the next year as teachers pass on their records and reports both written and verbally to his next teacher.
I'd personally think carefully about letting the school know of his condition. even take in some information about it (though most schools will have some knowledge of most conditions if they have the possibilty of affecting a child's learning in any way, shape or form.
They won't single him out or use his condition as a reason for him not listening (boys will be boys as they get older and love nothing better than to ignore the teacher and have a laugh with their peers) but they will at least keep it in mind and will report any changes in his progress.
Please don't think I am lecturing you; It is your son and like all parents we make what we think are the best choices for our own children at the time, but please do re-consider your choices about informing his school or not.
Melbi x
angiemac
Posted
My daugter was diagnosed in January 1992, when she was 2 weeks old. She is now 16 1/2 and a normal teenage girl. As a baby there were no differences between her and her brothers, she is slightlly smaller than some of her friends, but not much. She is a very active member of the scout movement, having just completed her silver Duke of Edinburgh, we are awaiting her GCSE results, and we are expecting great things. in short she is no differnt ot anyone else of her age, you wouldn't know there was any thing wrong. Don't treat them any differently, don't wrap them in cotton wool they are perfect children who need no extra care than any other child. My daughter si a very intelligent and confident young lady, and living proof that you can overcome this set back. she is now on 175mcg a day, but i think this will b e increased to 200mcg soon.
She has started puberty at the same time as her friends, and i will say again there is no differnce between her and girls of the same age.
fairy489
Posted