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Congested sinuses

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chantell28219
chantell28219

Four years ago I was diagnoised with vestibular migraines but there's another issue that is destroying my life and not sure if it's connected to migraines or something else! Sinxe all this started I have congested sinuses apon awaking in the mornings my nose runs clear gunk for up to 2 hours then stops Then every few months I start to feel very lathargic start sleeping alot eyes start to become blood shot dizziness may get worse...this is the build up...then my nose will start to feel prickly inside for a few days I'll then awaken to my ears ringing really loud and they feel muffled my sinuses will be severely congested like the blood vessels have swelled so bad ..I can't breath...I feel panicky and cry with it this can go on months and this last attack caused burning and throbbing inside sinuses and roof of mouth plus right side of face. I have had ct and mri scans of sinuses and brain all clear I have been told I have some form of migraine but still not been diagnoised except for vestibular migraines. I thought possibly trigeminal neuralgia but been told that it's probable trigeminal neuropathic pain? Is there anyone here with symptoms like me? I'm at my wits end..sorry for long post.

0 likes, 31 replies

31 Replies

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  • pcat
    pcat chantell28219

    Posted

    Hi chantell, during my endless research trying to diagnose my own symptoms I kept coming across a condition call idiopathic intracranial hypertension. Look it up, see what you think.

    I hope you get some answers soon.

    • margaret22116
      margaret22116 pcat

      Posted

      Yes that can cause those kind of symptoms. Dod you ever get a diagnosis pcat or proper treatment? My migraine was caused by vasculitis. Have a read up on that.
    • chantell28219
      chantell28219 pcat

      Posted

      Hi 2pcat, interesting I've looked it up and had a read..I'm not sure I have that, I don't have visual problems but I do have some other symptoms. Why has no doctor investigated this? Makes me so mad! Did you have this?

    • pcat
      pcat chantell28219

      Posted

      Hi, I don't know what I have :-/ IIH just keeps popping up when I google my symptoms. I am planning to mention it to the neurologist next month.

    • pcat
      pcat margaret22116

      Posted

      Only just saw your reply Margaret, thanks for all your input on my own post.
    • margaret22116
      margaret22116 pcat

      Posted

      You are welcome. I have never had IIH by the way. I know other sufferes who have but I haven't even though I had symptons of it.

    • chantell28219
      chantell28219 pcat

      Posted

      Thanks 2pcat I'm going to ask my neuro to..it's good to rule things out.

    • chantell28219
      chantell28219 margaret22116

      Posted

      Hi Margaret I meant to ask you would asking my doctor for the ANCA blood test show if you have vasculitis? My symptoms seem to match wegners x
    • margaret22116
      margaret22116 chantell28219

      Posted

      My anca test was negative Chantelle. But yes they should do it. It is a strong indicator if positive.
    • margaret22116
      margaret22116 chantell28219

      Posted

      Also some gene they test for ...hbla 51....something or other. Probably got that wrong. I was negative there too.
    • margaret22116
      margaret22116

      Posted

      Oh but that may be just Behcet's only so sorry. Forget that maybe. ??

    • margaret22116
      margaret22116 chantell28219

      Posted

      Visual problems are only one possible symptom of vasculitis. Some people have that some don't.

    • RenitaH
      RenitaH pcat

      Posted

      You should find the cause, naming it may make you feel better, but bringing down the inflammation is key. Steroids just mask symptoms and confuse the picture, driving disease further inward.
  • RenitaH
    RenitaH chantell28219

    Posted

    I would bet mold sensitivities. Easy way to see is sleep in another house one or two nights, see if you improve.
    • chantell28219
      chantell28219 RenitaH

      Posted

      Hi 2RenitaH, I live in a new build flat...symptoms really kicked off after moving in around 4 years ago but don't think it's connected to flat as I wasn't right for few months before then. I really don't no what's the cause am at my wits end. I've tried to get answers but nothing ever shows up on tests or scans

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