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Considering hip replacement...with cerebral palsy !

Posted , 5 users are following.

julie70103
julie70103

I have cerebral palsy, and having had 2 failed arthroscopic surgeries, my consultant isn't keen to do a hip replacement, as it can cause dislocation.

Does anyone have the same condition as me, and have successfully had surgery, as I'm in so much pain now, I'm seriously considering going ahead with the op, any advice out there? !!!

1 like, 8 replies

8 Replies

  • linda38528
    linda38528 julie70103

    Posted

    Sorry for your situation Julie and I wish I had advice to offer but all I have are warm hugs. I hope you find a solution.

    Wishing you all the best

    PS - don't despair that you didn't get replies today as the system has been down or wonky much of the day.

    L

    • julie70103
      julie70103 linda38528

      Posted

      Thank you too linda, I'm sure that there will be some advice out there to give me hope x

  • renee01952
    renee01952 julie70103

    Posted

    hi julie, 

    I am with Linda here ... I hope someone on the forum has feedback for you -

    Have you considered a second opinion - 

    Please let us know more about you if you want to share, okay ...

    Know that there is a lot of love and support out here for you ..

    big warm hug

    renee

    • julie70103
      julie70103 renee01952

      Posted

      Thanks Renee, I have until November to decide what I want to do, so hopefully, there's time yet for someone to reply, with good news x

  • dorothy04749
    dorothy04749 julie70103

    Posted

    Dear  Julie

    i put "cerebral palsy and hip replacement " in Google search and it makes grim reading.  However it mentions a register for this type of work and refers to the Cerebral palsy help organisation so my advice would be to ring them.

    you could also ask for a 2nd opinion at The Royal Orthopaedic Surgeon hospital in London or contact them and ask who carries out this type of operation with a high success rate?

    i would worry that if your surgeon feels it would be bad for u then it could become self prophesying, neither do you want a gung Ho type.

    wishing u all the best but please take the time to make your decision an informed one all round.  Regards Dot

    • julie70103
      julie70103 dorothy04749

      Posted

      Thanks for the info Dorothy, my consultant did advise me to search the Internet too, which I'm going to do thoroughly before I go back to him in November with my decision, whether to go ahead with it or not, once again thank you for your help x

  • Chills85
    Chills85 julie70103

    Posted

    Hi Julie I also have cerebral palsy and had to failed hip surgeries one being to fix a tear and the other a oestomy, which resulted in secondary arthritis. My current surgeon as I had a different one who originally did my first surgery, but doesn't do oestomies. Suggest I have a hip replacement, which was a success till the 3rd month and I jarred my hip from nearly stacking it down a hill in my chair. so I need a revision surgery to get a bone fixed and the psoas muscle released as it was very tight, plus screws removed from a previous surgery. I'm doing ok now just a little bit of groin pain still that the surgeon is still working what it could be. Hope you go ahead with it. As I found great relief before my little incident.

    • renee01952
      renee01952 Chills85

      Posted

      hi chills, 

      thank you for sharing your encouraging story and I hope Julie will find it -

      wishing you good recovery, darling

      big warm hug

      renee

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