Constant abdominal pain for 1.5 years. No Doctor is yet to know what is causing it, please help

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Hi, I have had this pain for 1.5 years and is often to the beat of my heart. I have never had a day over this time of feeling normal. After eating large meals it can get worse but I have never found any food in my diet to trigger the pain. I feel like I have tried everything and all the following tests have been clear.

  • Gastroscopy
  • Ultrasound
  • MRI
  • Urine test
  • Blood test
  • Stool test

I have also tried the Low FODMAP diet for 6 weeks and didn't help (this includes dairy and gluten free). Other things have been tried including peppermint supplement, pro-biotics, ranetidine and ompeprazole.

It could be some sort of IBS but I have never had any problems with diarrhea or constipation

Any help would be appreciated thanks

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11 Replies

  • Posted

    Very similar to my problem. I got H Pylori test positive. Did you go for it?

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    • Posted

      I've had a stool test, blood test 3 times and a stomach swab in the gastroscopy, i think it would have come up in that. How did you get tested for it?

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    • Posted

      Well for me that tested without asking me, along with the endoscopy. Actually I get confused why many patients I hear don't go for H Pylori test.

      They say 60% of world population has H Pylori. And that makes me think, what it means to be H Pylori positive.

      My doctor, even when H Pylori was positive, was stressing more that it's a gastritis problem due to stress.

      So I am not sure how important is it to get it tested.

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  • Posted

    Did any GI ever suggest treatment with amitryptiline? It is commonly prescribed for muscle spasm in the stomach.

    There is a natural herbal remedy that is worth a shot, a forty year old remedy, Iberogast that brings relief to a lot of people. I found it from a fellow gastroparesis sufferer then my research found so many people who had found help for many different issues. I too had so many tests with no answers until I finally went to a gastric surgeon and she scoped me and solved the mystery. It can be a frustrating nightmare. I am so sorry you are going through this. Blessings and hope to you friend. Praying for you

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    • Posted

      Thanks for the help. I have been on amitryptiline for 4 days now. No change as of yet. I was told that if it doesn't work within 2 weeks to stop and then I am to try Paroxetine. I will look into the Iberogast. Thanks

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  • Posted

    Ask about IBS. You can get pain predominant IBS which means you will get more pain but less bowel habit change. Bowel habit change can include changes in colour and texture of your stools and not just constipation or diarrhoea. Fodmap doesn't help everyone with IBS.

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